Struggling…looking for advice

Hi all

 

just wanted to drop my thoughts onto here really as I'm sure many of you will feel or have felt the way I do

my mum was diagnosed about 6 weeks ago with stage 4 lung cancer it's in multiple pulmonary nodes her spine and also her hip she's struggled with pain for ) months but other than that was fine 

they are offering her chemo and also immunotherapy which she is due to start next week

im concerned as she's gone downhill in the last few weeks,  I've just spent a week with her in Devon she was really fit active and no other co-morbidities before being diagnosed with this she's in a lot of pain upper back now constipated due to pain relief struggles to take tablets she cannot swallow very easily and is hardly eating she has no appetite and is asleep all the time, clearly she is struggling but doesn't want fuss 

ive aired my concerns with the cns this morning who said to get her to the gp which she is refusing to do 

im struggling with it all I feel like it's all on me im the only one we lost my dad five years ago to cancer too 

I just want to see mum as pain free as possible and for her to be as comfortable as possible and not be "ill" im worried chemo will not be good for her given the way she is now shes not that strong anyway very slim hardly eats and I worry about the effects of this on her 

anyone going through the same would be nice to hear thoughts x 

  • So sorry to hear that you are going through this. It is such an emotional rollercoaster. I've been in this position last month with my grandmother. Make sure that you also take time to rest and look after yourself, it is necessary.
     

    Has anyone been in contact with you or your mum regarding assigning a team of a palliative carers or nurses yet? If not, chase this up with GP or encologist. See if nurses could visit your mum at home daily/weekly to make her comfortable and to check in with her. They help with bathing, arranging wheelchairs/comfortable mattresses at home etc. I found the help invaluable. 
     

    My Nan was similar, did not eat much, lost a lot of weight, very sleepy and weak. She was told to stop chemo because her blood was too low. Then we saw her deteriorate fast, we took her to A&E and they assigned her to the hospice. She was much more comfortable there, had all the pain meds available, she even got pampered with hand & foot massages. But each & Every family is different so it might be worth you having a chat with your mum, tell her how you are feeling, get advice from nurses and other professionals. It should be an open discussion.
     

    Wishing you the best, Sam x

  • I’m so sorry what your going through I was in the same position 8months ago it’s so hard try to keep strong sending you hugs x x annie 

  • Thank you that's really helpful

     

    no we haven't been assigned anyone as of yet but I will look into that x 

  • Hi Annie

     

    thankyou I appreciate that 

    can I ask did your husband have treatment?x