My mum is suffering

Hi, 

I'm 26, an only child and just live with my mum. My dad suddenly passed away 2 years ago and now I'm losing my mum to this horrible horrible disease, I ask myself daily why life is so cruel and unfair. I'm so scared of losing both my parents in such little time and being on my own, I'm so sad that they are going to miss out on me ever getting married, having children etc. It breaks my heart.

 
My mum is now bed bound, can't move, can't eat or drink, can't hold a conversation, we can't even touch her without her crying out, the only sounds that come out of her mouth are the sounds that she makes with every breath because she's in agony. Shes in agony all day and night and doesn't sleep unless she's been injected with oxycodone and midazolam but that only lasts 2 hours and then she's awake again and groaning out constantly until I ring the nurses to come back and inject her again. Nothing seems to be working, and I can't cope with seeing my mum like this any longer. 

I don't know what to do, I'm getting so frustrated and then I feel guilty, but I haven't slept properly for days, the constant groans are just making me lose the plot, I feel so ill. 

I don't understand why nothing is taking the pain away, my mum shouldn't have to spend the last time that she has got left like this, it's unbearable to watch and so so unfair. The nurses have now set up a syringe driver but I've still had to call them out numerous time to inject her again. The only time she's quiet is when she's sleeping, but all I want is for her to not be in any more pain. 
 

I don't really know what I want from this post but I just wanted to get it all off my chest and see if anyone has experienced anything similar and has got any help or advice that they could give me. 
 

Thanks x

  • Hi there ...

    I'm so so sorry your going through this heartbraking time at the moment ... life has been really crule to your little family ... and sadly there's no easy way round .... but know your not alone ... many have been where you are now ... 

    You just want mum's pain to stop yet feel scared of being without her ... all I can say, is you won't loose her, she'll just move into your heart where you can keep her safe, and take her with you through your journey... try just to live in the day ... get some councilling later ... call Marie Currie... ask them to help you through this time ... 

    I'm sending you one of my nanny hugs, I save for my amazing granddaughter Emily... I'm sure she'd love you to have one ... Chrissie  

  • Oh sweetheart, sending you a big hug. I am going through exactly the same scenario with my mum at the moment except I am lucky enough to have siblings. I really don't know how I'd manage this without the support of others. Is it possible that you can get Marie Curie nurses to come in and let you get some rest? Call them today and ask. Also, speak to your local hospice as they will be able to manage her pain and agitation a lot better.

    I hope your day goes okay xx