Recovery tips during COVID (myelofibrosis)

Hi everyone.

My dad has been dealing with myelofibrosis for a couple of years now. 

He had his stem cell transplant late last year and has been doing relatively okay (bloods/haemoglobin yoyo-ing a bit) and still hasn't regained much weight. 

I'm concerned that his recovery is being stunted by the horrid situation the vulnerable are in at the moment. 

Worried about diminishing mental health caused by consumation of the news (media scaremongering), not leaving the house much (aside for walks etc), his eating situation (occassional bouts of nausea, lack of appetite caused by meds/treatment) and just genuinely getting a bit bored of being at home for 18 months.

I'm based in a different city, double-jabbed and testing regularly for work - so I'm able to live a relatively 'normal' life. 

My parents have been pretty seriously isolating in the country since March 2020 last year and this doesn't look like it'll changing anytime soon. He's double jabbed but because of his treatment/condition, he has no antibodies (therefore no protection) and COVID is rife atm.

Would really appreciate any pointers on ways to support him whilst not being able to visit at the moment. 

We're keeping in touch and still zooming regularly.

Normally I'd be keen to send him a box of beer, or meal kits... urgh!

 

 

  • Hello nickbom and a warm welcome to Cancer Chat! 

    It's a really difficult time to be supporting a loved one whilst being unable to visit as covid is still spreading in the community. I can understand why your dad is needing to isolate at the moment as he isn't protected against covid and you are doing the right thing in keeping in touch via zoom. There are lots of ways you can support him and show him your love. I like your idea of sending him meal kits or a box of beer if these are things he would normally enjoy. Perhaps you can still do that? You might be able to find ways to send these items online - it's definitely worth looking into this, little gifts and treats you can get sent online. Perhaps you could surprise him like this without telling him in advance that you are sending him something? 

    It's very nice of you to want to support your dad through what is an incredibly tough and lonely time for vulnerable people and I hope he is doing ok. I am sure our forum members will have great ideas too to share here with you so I will let them come and share their thoughts with you on this!

    Best wishes, 

    Lucie, Cancer Chat Moderator