Oesophageal cancer and jej feeding

Hi my husbands oesophageal cancer has returned and blocked his oesophagus again. He currently has an NG tube fitted for feeding and we are getting 3000+ calories down plus all the meds and supplements we want but they are pushing for a jej to be fitted. Anyone here lived with a jej - would love to know your experiences as from my reading I think they can be quite restrictive 

  • First of all I'm sorry to hear your husband's cancer has returned. My husband had a rare form of oesophageal cancer and had a jej fitted for over 3 years. From my experience, it was extremely valuable in allowing him to endure multiple chemotherapy agents and cycles without losing weight. It was easy to use and  he could "plug in" overnight to gain the majority of calories while sleeping. You can have different speed settings which allows you to find the most comfortable level of feeding, too fast can induce nausea. Also you can sryinge in the Nutricia high calorific drinks during the day if you want to go away for a few days and not take the pump. He also used it to syringe in dispersable paracetamol & any other liquid medications. (The odd glass of brandy went down there too haha!) Every few months he had it checked by the gastric nurse and changing the tube was done very easily. You can get different types, my husband initially had the one with the balloon but then had it changed to another one without, which he preferred. The initial proceedure to fit the jej was rather uncomfortable as his oesophagus was almost completely closed but I can honestly say it was intrinsic in prolonging his life as the nutrition he received enabled him to endure some quite intensive treatment without losing weight. Infact he maintained a healthy weight all the way through his treatment. When his tumour had shrunk enough for a stent to be fitted, he still chose to keep his jej, as it took the pressure off him having to eat enough calories. He could  just eat the foods he fancied, rather than how nutritious they were. I must say he was conscious of the tube hanging out of his tummy, but he said that was the only drawback. I hope this information has been of some use to you and I wish you and your husband all the best in his treatment going forward.

  • Thank you so much for your reply as it's helpful to speak with someone having gone through a similar illness/process. 
    Your answer has been really helpful esp to know he was able to keep weight on during treatment as my hubby has lost so much each time the oesophagus became blocked as it took the nhs over 2 months each time to act on his symptoms. Also the fact that he could safely syringe in bolus feeds and meds etc and tolerate them as our dietician has suggested this is not possible and it's something we wish to be able to do to support him  

    i love the fact that a sneaky tipple went down on occasion too, that brought a smile to my husbands face and he's not even a drinker!

    Thank you so much for taking the time to reply x

     

  • You're more than welcome, I'm glad I was able to be of some help & please feel free to pick my brains if needed in the future x