I don't know what to do, what do I do?

My mum was very recently diagnosed with lung cancer which had already spread to her lymph noads and brain by the time it was discovered.  Getting information has been so hard.  Her tumour and meds resulted in confusion so she couldn't retain what was being said without mixing up or forgetting.  

She had brain surgery and is waiting for an appointment to discuss options which I can go to thankfully.  I just don't know what to do for her.  She is very weak and I just don't know what is 'normal' and when to call someone.  I feel so helpless for her.  

  • Hi

     

    Sorry I am the first to respond.  I am going to do so from a very practical stance and from my former work as a social worker.  I would say you need if you are able to get your mum's permission to  contact her GP.  You need to have some idea of the problem areas where she is going to need day to day care and support of a type and quantity that you may be cannot give. I mean her personal  are etc as well as her nutritional and medication support needs.  The surgery  can refer to social services if required.  Please come back to me if you want to discuss further.  So sorry you and mum are going through this.

     

  • Thank you for coming back to me.  Her diagnosis is 2 months old and she suffered with behaviour changes and erratic behaviours caused by meds and brain tumours.  I would try and speak to GP, referral to social worker etc and she would refuse consent for them to speak to me.  It is better now though.  This has made the past few months even harder.

    So many different professionals all say to contact them if she is unsure about pain and that's confusing too.  Who first? 

    Thank you for replying to me.   I feel like I'm in slow mo, life has been paused.