I feel like I'm not getting the facts

Hi 

My husband has incurable stomach cancer

He has had radiotherapy and chemo neither worked in fact it has progressed

The cancer nurse specialists said he needs to get he's strength back then they can see if they can offer him any other treatment.

They haven't even told us what other treatment is available it feels like we have just been left

He is struggling with sickness at the moment got nurses coming in doing he's meds through a driver

I haven't been told if it has spread anywhere else example lmpyth nodes 

He seems like he's getting weaker 

Would they tell us if its terminal or its still treatable 

I have been worrying especially since Friday last week but typical everything has to be put on hold because of weekend I wish my husband could have a holiday from cancer

 

 

  • Hey Busby666, 

    I'm gonna keep this short and sweet... if you feel like you need more info, call his cancer care nurse or start calling the consultants secretary to get a call back and get your questions answered... Write down all your questions fist so you don't miss anything and then get on the blower and annoy the *** out of people till you get your answers.

    Lynsey 

  •  

    Hi Busby,

    This must be an awful situation for you both. I agree with Aggie's advice, start asking questions and you should get some answers. Many people don't want to know what is happening at this stage, so you don't always get the answers you want unless you ask direct questions.

    Wouldn't it be great if we could all get a holiday from cancer?

    Thinking of you both.

    Kind regards,

    Jolamine xx

  • Hi Lynsey 

    Thankyou for your message you are right what you say.

    Today Ian has took really poorly he has been took into hospital 

    Surprise surprise  no answers again a stupid doctor actually phoned me from outside A and E to basically ask me what was going on with my husband and does he have a DNR I was horrified they was never any mention of any problems with he's heart 

    To cut a long story short they moved him up to a ward put him on antibiotics drip because they THINK ! He may have a perforated bowel he also has a kidney stone which they missed this is the second one in 3 months 

    They have no answers where we go from here they did say he woudnt be a canadite for surgery no reason why 

    I have just sent a really long email to the cancer nurse  the one who apparently is always at the end of the phone lies ! I have had a message sent to the ongulist aswell

    I have said in my email u want answers and I want to know that they have give my husband any treatment he can have  to help with pain management him been able to eat

    I also said I will make sure he gets every chance at having what time we have left in comfort 

    I will make sure of this I'm not going to give up on him 

    I really need to make a complaint about this whole situation and I will do that 

     

  • Hi thanks for reply

    You have hit the nail on the head I don't want to know what is happening at this stage but I know I need to 

    I have only just come to terms that it's incurable if I'm honest 

    I resigned myself to him having treatment to manage he's syptoms and beable to live what time we have left in comfort 

    I really hope with all my heart that we may have a year at least  together I wanted us to get married again like we did 24 year ago 

    But now I'm sat alone terrified incase the hospital ring me 

    I feel like I'm having a outer of body experience I can't come to terms with what's going on 

    When doctors are talking I can't hear them I'm so scared 

  •  

    Hi Busby,

    Bless you! The way you are feeling is perfectly normal. You are naturally scared stiff and I don't blame you. Have you had any word from the nurse or the oncologist yet? All you can do is to be there for your husband, to make sure that he is comfortable and that his painis well controlled. Sadly, you will find that he is likely to eat and eventually drink less the nearer he comes to the end.

    You might find it helpful to write down a list of all the things you want to know, as it's all too easy to forget an important question in the heat of the moment. In the meantime cherish the time that you have left, instead of worrying about what will eventually happen. Takes things a day at a time or an hour at a time if need be. The whole picture is just too much to cope with at the moment. 

    Thinking of you and willing you the strength to see this through.

    Kind regards,

    Jolamine xx