Daily devastation

My mum was diagnosed stage 4 in February she had not been poorly so was a huge shock and to find it was stage 4 was a bigger blow, she had one round of chemo but then her bloods never are right to have another just keeps being put back.  As this has kept happening she has become really ill, first acscetis that was drained twice and now faeces have built up in the abdomen, I know am not the only one going through this hell and I keep telling myself that to try and ease my pain but am stuck as to if I will ever be okay again I feel like my heart has been ripped out and scared to face the world without her.  When it started tried keeping hope and positive thoughts but now all that seems to have gone as whenever she picks up a little she just goes back to something worse happening.  Have appointment with oncology again next week think it will be a telephone appointment as will be unable to drag her to hospital and I think he will just say he can do nothing for her .  Struggling mentally at the minute and hating life how do you even start to get over this watching her each day I just feel helpless I don’t want her to suffer but do not want her to die either and through it all she is so brave even though she must know that things are not good and the end is most probably near it’s breaking me

 

joec

  • You are certainly not the only one feeling that way today. And I share your dread in waiting for the words from the next consultation. It is in my nature that I am a planner, and I like to keep looking ahead, seeing milestones on the horizon. Cancer is teaching me to train myself out of that habit, because it is doing me no good. No sooner have you settled on a plan of treatment stretching ahead a few weeks, some adverse effect kicks that out of the window. My planning horizon is now only ever to the next consultant's appointment. Focus on what is good about today. Its not easy. If I really can't control my worries I give myself a time out, step outside and look at a tree/flower for 5 minutes. No thoughts about anything else allowed in that time. If I have longer maybe I'll run, till I haven't the energy to overthink any more. Hope you find your way to shut down for 5 minutes, then you'll feel better equipped to cope with whatever is happening today.

  • Thank you for your reply mother of boys I hope all is going well for you they have stopped treating my mam now as she is just too weak getting her home tonight with a hospital bed 

     

    joec