Cancer Research UK main site
  • Replies 2 replies
  • Views 178 views
  • Users 0 members are here

Caring for my mum with tonsil cancer

DeeFlounder
Offline

Hello all, 

Looking for some practical advice and guidance please?  My mum was diagnosed 3 weeks ago and has since had her mask made and teeth out, she's in a lot of pain and is popping nurofen and paracetemol on the advice of her nurse.  Her treatment starts Monday 24th, where we believe she will get Chemo every 3 weeks, with radiotherapy daily until the 2nd of July.

I've felt quite helpless, the best I can do is research things and prepare for the future.  I've bought the supersoft toothbrush, ginger tea/sweets (though I know her tastebuds may change), comfy clothes, colouring books, books to read etc. to try make her comfortable?

What practical things can I do to try to help her?  With COVID how do I find out if I can go in to sit with her, or can I just make an appointment to go in and visit?

I'm going to be working through so much of this and I just feel so helpless.

thanks

  • Offline

    Hello,

    my mum was diagnosed with a lymphoma in her trachea in Feb. She is now half way through chemo and has just had her results back from mid point scan. There are NO SIGNs of lymphoma! I'm so proud of her as she's 83!

    I wanted to reach out to say ask lots of questions whenever you get a call from the nurses. Ask for pain relief if your mum is struggling. My mum has had severe back pain throughout (unrelated) and has been given the strong painkillers she needs from her GP.  I found mum did lose her appetite but is better with soft foods so pasta and sauces soups and mash potatoes etc.

    ive been giving her regular back massages bought nice smelling oils & soap. She is living with us which has made things easier as I've been working. Be positive you will get through this.
    mum has had to go to the ward on her own because of Covid but I have been allowed to walk her to the ward door and collect from there each time. The worse thing for her has been hair loss. We have finally found some cotton turbans that suit her and make her feel less conspicuous (her words!). Sending very happy thoughts to you both. Charlie Makesy has been of help to us ' This is getting harder' sighed the boy 'then every step you take is a bigger victory' X

  • Offline

    Hello,

    I had a tonsillectomy followed by 12 radiotherapy treatment 2 yrs ago, aged 70.  What your mum needs most is your love and support, rest when she needs it but normal activity when she wants and can manage it.  Especially a short walk in the fresh air.

    I developed a large ulcer at the back of my throat and lost 1 and 1/2 stone. There is no reason this should happen to your mum, but if she experiences any difficulties make sure you alert her nurses ASAP as they can give medications for all problems.

    Ask to see a nutritionist who can advise you on suitable drinks and foods and will probably give you sample high protein drinks.  I personally  didn't  like many of these and my husband made my own favourite high protein drinks.

    Hope all goes well and I'm  sure with your care she will do well.

    Sent with love, beeps

Speak to a nurse

Quick links

Follow us

Registered with Fundraising Regulator (logo)
Cancer Research UK is a registered charity in England and Wales (1089464), Scotland (SC041666), the Isle of Man (1103) and Jersey (247). A company limited by guarantee. Registered company in England and Wales (4325234) and the Isle of Man (5713F). Registered address: 2 Redman Place, London, E20 1JQ.