First time i have ever posted in a place like this allthough reading other peoples stories and experiences has helped me greatly during my mums journey. To cut a long story short she was diagnosed with stage 4 melanoma with spread to liver and lungs 16 month ago, just after christmas 4 tiny brain mets were discoverd and she had gamma knife surgery and switched from pembro to ipilimumab, today we got mums latest mri results and while the previous brain mets cant be seen her oncologist says there is a considerable change in her brain and swelling, my question all though i know no one can give me answers is, what now? We wont know if the ipi has worked in her body till her ct scan results which has been brought forward to tomorow and then she is to be disscussed in an MDT meeting wendesday, i know the likely outcome of this will be no more options as she is braf negative and tried both immunotherapys, i suppose im looking for someone who is or has been in a similar situation and someone who can give me any advice on how to help my mum. Thanks for reading if you got this far.
