Mum diagnosed with Glioma. When should we sort out her care?

My Mum was diagnosed with a brain tumour (Glioma) back in January, in February she was given a prognosis of round 6 months.  She is well and cheerful and has accepted her prognosis bravely, but I am not sure what to do about her care. She wants to stay at home and so far is coping well, although slowing down.  We are finding that her speech goes when she is tired and she is becoming physically weaker although she still collects her news paper in the mornings.

Our problem is when to get care. She thinks she will have enough notice of when things are going really bad to call in some help fulltime, that will take a couple of weeks to sort. I am not so sure, from what I've read the end can come on very quickly and be quite sudden, in which case it will be too late to organise anything. I am an hour away and we spend a night together every week and I am on standby to go to her as soon as needed.  Does anyone have any advice for us in terms of how things go at the end? I know everyone is different but I want ot be as prepared as possible to help her when she most needs us.  Thanks

  • Welcome to the Cancer Chat community Chrishcon although I'm sorry about the prognosis your mum has been given.

    I think many of our members have found this difficult to figure out so you're not alone and I'm sure some of them will be along soon to share their experiences and advice. If you'd like to talk things through with one of cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    I know you want to know what may happen towards the end and hope our dying with cancer section will help, but do be aware that it can be quite a tough read due to what's being discussed.

    Best wishes to you both,

    Steph, Cancer Chat Moderator