Struggling

Hi my husband has bowel cancer which also went to this liver and lungs.  He's been battling for nearly 4 years but since they stopped all chemo as the disease is very progressive he has gone down hill massively.

he looks so frail and poorly and because of the liver disease is his skin is yellow as are the whites of his eyes.  He also has ascites which they don't want to drain as they said it will come straight back.  I am just heart broken watching him fading away from me!  I love him so much.

Parents
  • Hi 

    I'm really sorry about your husband's diagnoses. 

    It is so so difficult to watch them change so quickly. 

    My husband has always been the strong one for everyone.

    You both take care x

  • Thank you for your message.  As hard as all of this is I am determined not to let him down 

    My emotions change from hour to hour - I don't cry in front of him but I do when I'm alone or with other family members or friends.  It helps me to talk openly about what's going on - everyone says I'm a strong person but I don't feel I am, I'm just doing whatever he needs me to and some days I feel so helpless - he is becoming confused which I've been told can happen when the chemicals the liver would normally deal with move to the brain. It's scary at times especially the evenings and weekends where there are less people to ring for help.

    im not sleeping;  partly in case he needs me and partly because his breathing is noisey but I don't want to sleep in the spare room - that for me would be leaving him

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  • Thank you for your message.  As hard as all of this is I am determined not to let him down 

    My emotions change from hour to hour - I don't cry in front of him but I do when I'm alone or with other family members or friends.  It helps me to talk openly about what's going on - everyone says I'm a strong person but I don't feel I am, I'm just doing whatever he needs me to and some days I feel so helpless - he is becoming confused which I've been told can happen when the chemicals the liver would normally deal with move to the brain. It's scary at times especially the evenings and weekends where there are less people to ring for help.

    im not sleeping;  partly in case he needs me and partly because his breathing is noisey but I don't want to sleep in the spare room - that for me would be leaving him

Children
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