Hi HotPot123,

I'm sorry you haven't received a reply up until now, and I hope things are OK at the moment.

If you still have any concerns and would like to talk things through with one of our nurses, you can reach them on 0808 800 4040 (Monday-Friday, 9-5).

Wishing you all the best,

Ben
Cancer Chat Moderator

Hi Ben

Thank you. My fears about the jaundice as a sign that the liver function had further declined all came to a head on Saturday night when elevated bilirubin led to a 3 hour period of vomiting and diarrhea with the on call nurse needing to be called out to administer an anti sickness jab.

Since then it's been a rapid decline and whilst 2 days ago she could walk to the bathroom, yesterday she could stand and with some help wriggle on to the commode, but today she is bedridden and catheterised.

Mum is now formally on the end of life care pathway. She is declining rapidly and is clearly exhausted.

I'm sharing the journey as an example of how things can change quite dramatically in a very short space of time with advanced pancreatic cancer.

I'll just add that the support I've so desperately needed over the past 6 weeks since mum was discharged has now all ramped up and the community palliative care team have been fantastic. As the sole caregiver 24/7 I was losing all hope that anyone was actually going to come to our help. The system seemed so bewildering and bureaucratic.

Hope this is helpful to others on the forum. 

HotPot123

She is being kept comfortable and pain free which is a blessing. 

Hi HotPot,

I am so sorry to hear what you are gong through. I lost my own mum to secondary breast cancer which had spread to her liver, lungs, bone and brain. We have been through all that you ae going through and it is heartbreaking.

I am so glad to hear that the palliative care team has stepped in and that you are at last getting the help you need. It is so difficult trying to cope with all of this on your own and, you're right, the system is far too bureaucratic.

It is good to hear that your mum is being kept comfortable and I sincerely hope that she has a peaceful passing.

Please keep in touch and remember that we are always here for you.

I wish you the strength to get through this.

Kind regards,

Jolamine xx