Hello,

I wanted to hear from anyone who has Bowel Cancer with the BRAF mutation. 

My mum had stage 3 bowel cancer and was in remission for almost 2 years. Her latest scan showed a large tumour that was by the bowel in the space of the 12 weeks of waiting for surgery it grew from 9cm to 12cm and then finally to 16cm before it was removed.

As you can imagine we were all devasted. Pathology has now been completed and we have been informed that my mother now has the BRAF mutation. Her oncologist has said its difficult to know the prognosis with this as with this mutation cancer spreads very quickly, so it is now pallative care, and the prognosis isn't good. 

She starts chemo this Friday and is really scared, she managed her last 6 months of chemo resonably well, but this time it sounds like it could likely be really rough and I know she is thinking a long the lines of....maybe I would rather have what time I have left feeling as well as I can in myself withouth the affects of chemo. Which is obviously incredibly hard to hear but I am mindful that I want to be supportive as possible with her decisions.

I wondered if anyone has on here has got Bowel cancer with the BRAF gene mutation, how are you doing? and also anyone who is having Luorouracil and Irinotecan (FOLFIRI) chemotherapy? How are you finding it? 

Any words of wisdom/ support/ your stories would be really helpful at this time.

Sending everyone much love and postive energy. 

Julia xx