My husband has incurable cancer and I'm struggling

Hi. I'm 53, my husband is 59. Three years ago he had kidney cancer picked up early. After an operation to remove half a kidney, he recovered well. 

The last regular scan picked up 4 nodules on his lungs. Three on one, one on the other. He was told it's treatable but incurable. His prognosis isn't as dire as others, it's about 4 to 5 years. 

 

For the first two weeks, I threw my energy into finding the best treatment to prolong his life. I became superwoman for him. Now, we have a plan of sorts in place of treatments but I've fallen apart. He has settled into a calmness now but I'm an anxious, stressed shell.  Whenever I'm in crowds it with people I don't know, I have an anxiety attack. Feeling dizzy, wobbly and out of control. Even at my sister's yesterday with my parents, I just needed to leave the room. My sister lost her husband five years ago and understands. I suddenly realised that I don't feel safe anymore, that the ground is shifting beneath my feet and I've lost my balance. I rang the Maggi centre and have booked for some counselling next week. I know I need to be proactive.

 

What frightens me is that I may feel like this for the years he has left. It's a long time to feel so scared. He's my rock and I'm already having separation anxiety. It's like a living grief. The covid pandemic hadn't helped of course, stuck in until things reopen....and then we will be locked down again sometime with this new variant. We both had covid last December and I'm still not right after that, though my husband kicked it's *** and is fine. I feel such a wimp, while he's coping much better. I feel so self indulgent just moaning on here but I'm hoping someone else feels the same dealing with a long prognosis. How do I settle into acceptance? How do I ignore the giant egg timer that sits behind us? Thank you x

  • hello, I feel for you and understand how you are feeling, I’m 54 and my partner is 60, he was diagnosed with terminal pancreatic 3 weeks ago, he then had a stroke and was in hospital and I couldn’t visit, he came home this week and I’m doing everything I can to make him comfortable and happy but fail most of the 5ime, I realised this morning he’s in pain and of course can’t be happy and plan things to do and people to see.  So I’m taking a breath.   Since he was diagnosed, I too ran around like super woman trying to fix everything but failed in most things I did which made me feel worse.  I too find myself telling random people and talk for hours to friends.  Also like you, I’ve booked CBT counselling today as I need structured help.

     

    its so tough, you’re doing a great job, we can’t control everything it’s about accepting that, it takes time, you will get through, you’re stronger than you think x

  • Thanks May66 for your supportive words. It's good talking to people going through similar, nobody else gets it unless they've experienced it. I'm sorry about your husband, pancreatic cancer is a hard one to for you both to cope with. 

     

    There seems a lot of fifty somethings going through this, it's really surprised me....and depressed me.

     

    Let me know how things go with your husband, I wish you strength and thanks for sharing with me. X

  • hello, thanks for replying, unfortunately, he had another stroke this morning and we’re parted again.  So sad x

  • Oh no! I'm so sorry to hear that. Can you visit him in hospital? Please let me know how he goes on. Thinking of you.