Cruel times

I've read many posts on here and decided to join up to both share and offer long arm support. I agree and feel the same as many of you in that supporting and caring for  a loved one with cancer is both physically and emotionally draining. I'm currently sharing care with my sister and we are both living with mum on 3 days in and 3 days off. We have carers come in twice a day to help wash and dress her. Mum started out with lung cancer in 2017 and had her upper lobe removed which successfully removed the cancer. Then 18 months later it returned and she underwent chemo which worked and to this day no cancer has returned. Last year mum suffered a seizure like episode in her left arm and hospital said it was nerve damage.  At the same time she was losing her peripheral vision and opticians found cataract in both eyes. We all clubbed together to pay to have removed but following removal her peripheral didn't improve and a further eye examination found it to be due to something in the brain which has turned out to be brain met cancer!! So confused as no lung cancer now but 2 tumours found in the brain!! Mum had whole brain radiation in Dec 20 which has shrunk both tumours but left her very cognitively impaired and unable to walk about and spends most time in bed and asleep- it's just so hard tending to her and I miss my mum!! My sister and I suffer bad backs and it's painful moving her and mum is very depressed and it's like she's given up... each day I'm anxious about how much time we have left- to add to it all my marriage broke down early 2020 and mum was my rock! On the days I come back to my house I walk into an empty house which really drives home my loneliness and fears... very hard times .

  • I'm so sorry you are going through this, I wish I could offer more practical advice and support.

    My mum was diagnosed with lung cancer last month and has refused any sort of treatment. I'm just at a complete loss of how to continue to live my life in the meantime.

    Your post really resonated with me as I too am caring for my mum along with my sister and can empathise fully when you say how emotionally and physically draining it is. I am so sorry also to hear of your marriage breaking down. You sound like an incredibly strong person.

    I'm sorry this reply wasn't more informative, it was just to let you know you're not alone, sending you all my love.