Metastatic lung cancer in brain

Hi,

My dad was diagnosed with advanced lung cancer in January. It had spread to his liver and he also had a tumour on his spine.

Alongside the fact it is advanced he is also very frail so he has been on palliative pain relief. His cognition and function ahd remained good and We have had very little involvement from anyone at thsi stage. However he had a fall around a week ago and since then he has become quite confused and muddled in his thinking and has at times completely hallucinated aboit where he is and has seen his nan in the room etc. He had an xray when he fell but was sent home. The hospital rang around 4 days later and said you have broken your  hip, you need to come in for surgery. So he went in on Wednesday. They have operated on his hip, but also scanned his brain and unsurprisingly he has a tumour on his brain. 

I'm finding it very difficult to process in that a week ago he was conversing with me and he was fine in that respect. I was seeing him a lot (I live aboit 1.5 hours away). I am really his only family member and have proved emotional type care for some years (he has long standing mental healthprblems). 

He isn't making sense now. He texts me far less and when he does its muddled up and confusing. Ita been quite a challenge ge trying to speak to anyone at the hospital so I feel totally useless. He texts me saying they are not giving him the right drugs and so on and that the nurses are not doing what they should. I did manage to speak to one nurse yesterday finally, who was lovely and she confirmed he is very forgetful and I read between the lines that he might be quite challenging at the moment and unsettled.

Anyway, I just feel like I don't know what to expect now. It seems he has changed so quickly. Literally overnight. And I thought we might have some time and now I don't know. I'm worried he won't even get out of hospital and I won't have seen him. I hate not being able.to visit. He has no one else and its so difficult imagining him being confused and alone in hospital.

I'd like to be able to arrange for him to be cared for in my home town once he is discharged and I have been in touch with social care about that, but I'm so worried that he won't get that far and that I won't see him again. 

 

I don't really expect any answers. Althiugh I would love some, i know this cant happen. I guess I'm just finding the uncertainty to be very hard. 

  • Hello Rebs40

    I'm sorry to hear about your Dad's diagnosis and the recent deterioration that he has experienced. It's obviously a very difficult time for you both. 

    It can certainly help to talk to someone at a time like this and I wonder if you'd find it helpful to chat with one of our team of nurses. I'm sure they would be able to give you some advice and support. If you would like to chat with them they're available Monday to Friday from 9 am to 5 pm on 0808 800 4040. 

    I do hope that Social Services and the hospital discharge team are able to work together to help you care for your Dad in your hometown.  

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • I'm really sorry to hear this :( how has your dad been since you last posted? Sending you love and strength x