Relative diagnosed with stage 4 brain tumour

I have a relative diagnosed with stage 4 brain tumour only last week. After X-ray, CT scan and MRI. The consultant has said surgery is not an option or radio therapy. He has only given steroids and hinted that they only have months to live. They had no headaches no slurred speach. Not in any pain just breathless, agitated and forgetfulness. I need some advice on what will happen next. He recommended calling the McMilan nurses 

  • Hello Queen10

    I'm sorry to hear about your relative's diagnosis. It's obviously a very difficult time for you all. 

    I wanted to make a couple of suggestions about areas where you can get some advice and support. Firstly you may find it beneficial to have a chat with our team of nurses. They're available Monday to Friday from 9 am to 5 pm on 0808 800 4040 and I'm sure they will be able to help with information and support. 

    If you have not any contact from your relative's GP, the district nursing team, or the palliative care team, then I would certainly suggest giving the GP surgery a call. The GP will be able to help with arranging local support services to make sure your relative is safe and cared for whilst at home. 

    You may also want to think about getting in touch with The Brain Tumour Charity. They have a wealth of information as well as a helpline that you can call for advice and support. 

    I hope this is helpful. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Hi I was diagnosed in October 2020 and I am fine.except chemo tablets I am not taking anything.but the problems I had 10x radiotherapy but doesn't help my right am.so I have asked for referral to another hospital better one because here looks they are dont bothered with a stage 4 patient.

    So if you can get a second option.

     

    Denisa

  • Thank you, I find it easier to message a question than say it out loud. 
    Are you able to give me any information about what her last few weeks will be like? 
    it's my mum and I have her at home with me, she doesn't want to go into hospital or a hospice. Will I be able to have support to care for my mum at home ? I want her to be at home with me if she can be. I also have three children at home and want to prepare them a little for what might happen later. 
    thank you for your reply 

  • Thank you 

    I hope you get the referral and have a gentle journey.
    It's so hard to know want to say to people I appreciate your Reply.  

  • Hello Queen10, 

    It's really hard obviously to give you an exact idea as to what the last few weeks will be like as this will be different from one person to another. We have general information on our website though on brain tumours which you can read here. More specifically, you can find out more about what happens in the last few months or weeks when someone is dying with cancer in this section of our website. 

    It's very nice of you to want to be there for your mum as she doesn't want to go into hospital or a hospice. But obviously I can imagine that with three children at home you must be extremely busy and you can't be everywhere at the same time. It is also very important that despite all this, you manage to carve a little time to take care of yourself and recharge your batteries. You can read more about this here. You will also find on that page information about who to get in touch with to find out more about practical or financial help available. Macmillan have a lot of financial and practical tips on this and you can also read more on their page about looking after a loved one with cancer hereCarersUK also gives expert advice, information and support to people who are caring for someone in the UK so it might be a good idea to have a good look at their website and to get in touch with them. 

    Talking to children about what is going on can be difficult and I can understand why you would want to prepare them especially as your mum will be living with you. We have useful information on this page on talking to children about cancer  which I hope will help you find the right words or approach when explaining things to them. Other forum members might also have been in a similar position having to prepare children or teenagers for what might happen and I hope that they will be along shortly and give you some good tips. 

    Keep strong Queen10 you do have so much on your shoulders but I wanted you to know that we are all here for you anytime you need to talk.

    Best wishes, 

    Lucie, Cancer Chat Moderator