Terminal cancerous brain tumour

 

My dad is 56 years old. 4 months ago he was the most intelligent man I knew in the world. A successful self made private man. He decided for a hobby to drive buses. He was driving his bus 4 months ago and had a very small accident and became very disorientated afterwards. He was taken to hospital and found a brain tumour. He had it removed in December and then was told its incurable cancer and has 16 months to live. He had 3 weeks of intense radiotherapy which ended 5 weeks ago but is now in hospital after his 4th sezuire, becoming lost and confused, can barely dress himself, losing his dignity and now refusing his anti sezuire drugs and steroids. It seems to be happening ever so fast. Im 35 years old with 3 teenage daughters and im not coping with this. I know it sounds selfish considering but all im doing is crying and have zero energy. I made it in to work today but don't think I can carry on. All I keep thinking is im never going to get to call him dad again, never going to have a fathers day again never going to be at my wedding etc im so overwhelmed im terrified I won't cope when he's gone as im not coping now. Ive never exoerienced this living hell this torture this pain. I just want my dad back

  • I am so sorry to hear about your dad. I have GBM4 brain tumour and was diagnosed and operated on in July 2019. I had the same treatment as your dad. I was given the news it is incurable and had 12 to 15 months to live. I am still here.

    Everyone is different. The consultant cannot be exact about timescales. I am 58 and married with middle aged children. I started with the seizure, that was the first indication I was ill. I was moments of forgetfulness. 

    Focus on every day and enjoy time with him. 

    John