Hey all
My husband was diagnosed with Gbm4 in 2009 he had it removed and had chemo after surgery.. He had a recurrences in 2014 had surgery to get it removed they found a 2nd tumour when he was been operated on they also removed that he had radiation after surgery. He had a heart attack in 2019 and another recurrence in Jan 2020. Because of the heart attack they can't operate this time he had more radiation in April 2020 which didn't work.. He started Avastin in Oct 2020 and is getting it every fortnight for as long as it works and his body can handle it.. He is under the care of palliative care also but his headaches are there all the time he was on steroids which he was taken of as they didn't agree with him he was on them best part of a year. But since Xmas he has no great appetite and sleeps quite a bit no energy whatsoever.. I just feel like we are hitting a brick wall all the time no one seems to have answers he's only 35.. But for someone who was always full of energy needing barely no sleep to sleeping all the time it's scary watching it he's so positive which is great I'm just so worried for what the future holds I'd rather know if this is a decline but the docs keep saying its treatment n tablets and the palliative care say by the sounds of his headaches the treatment isn't working. We have 2 young kids which is hard on them. I just feel so lost with it all and don't know what to expect next..
