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Lung, bone and lymph node cancer

Montpellier
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Hi, 

I am wondering if anyone can give me timescales on what time I have left with my husband. Or their experiences.. 
He has been diagnosed with stage 4 lung cancer which is in the bones of his spine, shoulders and chest, lymph nodes and lungs. 
 

Awaiting lower body scan later this week as suspected lower down now too. Advised no PET scan due to the stage it's at so just CT. 
 

He's having a lot of pain with his back and been given morphine to manage the pain which is working currently. He still looks fine and is chirpy enough with the pain relief so I think I feel a bit bemused that this is happening really. One day we're rennovating a building and the next this happens. 
 

Can anyone share their stories and stories of any treatments when the cancer is so far spread. Or any insight into how long he might have under these circumstances.. 
 

Thanks in advance, 

Ali. 

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    Hi Ali

    My husband was given 4-6 months to live 15 months ago. He's still doing ok. All of his treatment is palliative to keep him comfortable but he said he will try anything to live a bit longer. He's got liver, bone and blood cancer. It's advanced stage that's spread. His only symptom was a crippling pain down his leg. We never dreamt it could be cancer. It's still like being in a nightmare and hoping to wake up with none of this happening.
     
    I cannot fault the treatment he's receiving, the oncology team have been amazing. It's nice they haven't given up on him. He's on chemo tablets and has just undergone a five day course of radiotherapy to try and shrink two of the tumours in his spine to ease the discomfort. 


    He's still ok. Although he's lost a bit of weight, on a good day you'd never know anything was amiss.The hardest part is trying to find food for him to eat. His appetite is so up and down. He can't stand the smell of cooking. This creates a lot of problems in itself. Also, the chemo has affected his tastebuds so that's tricky too. 


    It's hard trying to be cheerful and keeping his spirits up. His mental state isn't always good. That's the hardest part. All I can do is be there for him. My heart feels like it's being torn out and this situation is a living grief. I miss how things used to be but I've learnt how to be thankful for the time we had and the time we-have now.  

    There's no time scale with this. My husbands way past what they said should've been his time thank goodness. 
     

    My husbands on Morphine, pregabalin for pain relief and Lenvatinib for Chemotheraoy

     

    This site is brilliant Ali and please feel free to keep in touch.  
     

    All the best

    Kuiper

  • Offline in reply to Kuiper

    Hi there, 

    thanks for this. He went into hospital last week with breathing problems and a lack of oxygen which had built up over a couple of month coupled with tiredness. What they concluded is that the lymph nodes were enlarged that it was stopping oxygen flow. 
    the main reason I made him go to hospital was bruising on his chest and chest pains which has now been linked to all this. 

    Glad it's not just me hoping it was just a bad dream, thank you for sharing information with me,l really appreciatd. 

    xx

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