I'm so sorry. I'm not suprised you're feeling alone. Do you think covid has negatively impacted her cancer care? Macmillan are amazing. My first husband was in one of their hospices and they were truly excellent. I hope they can stop you feeling alone. X

Thankyou I have contacted McMillan. I actually think it's the Hospital. it's nick named the Death House . They wrongly diagnosed my fathers symptoms of Liver Cancer as Diabetes about 6 years ago, they have an appalling reputation of lack of care 

Hi Shirley, I just wanted to reach out to you and ask you how you are doing? Did Macmillan contact you?  I'm so sorry to hear your mum has been diagnosed with Glioblastoma, how is she? Have you any support from family members, you mention you have a sister. Remember to look after yourself too. X

Thankyou for your kind message, Still waiting on McMillan . Doctor visited yesterday his guesstimate for survival is weeks/months rather than years. My sister comes round when I need to go out and pick stuff up for mum , but apart from that I'm on my own with mum. I'm ok at the moment as mum seems ok, but forgetful and walks with a frame, but all her faculties are still there, I know it's going to get harder, it's like I'm waiting and terrified to sleep in case something happens. Doctor has said she may have fits, and I have been searching what I need to do if it happens. I think McMillan are having a meeting and my mum is being discussed Thursday and the Doctor will ring me Friday he says to let me know the outcome and what plan they have. 

Hi, does your sister live far away? Is she able to stay with you? I'm so sorry to hear the doctors prognosis. Write down any questions you may want to ask the doctor or Macmillan when they call. I know you must be very scared but you can always call Macmillan back and ask them what you should do if your mum has a seizure. I hope you manage to get some sleep tonight. X

Thankyou . My sister lives 2 miles away but isn't really able to come much because of her dog. Good idea to write a list down of what I want to ask, Thankyou so much for your kind replies x

Hi I’m sorry about your mum my husband has the same. Macmillan are great and I hope you get the help and support you both need xx

Thankyou for your kind words, had a call from the oncology team at the hospital, they've basically confitmrmed mum isn't strong enough for treatment, so it's Pallative care. They can't give me any sort of timeline , so it's basically one step one day at a time x I'm sorry to hear that your husband has this, It must be awful for you, happy to chat anytime . Have you got support or help?. Have they given you a prognosis? What sort of help are you getting from McMillan I haven't had any calls or anything from them yet . Sorry for the questions, and totally understand if you don't want to talk, but Thankyou for taking the time to reply, it's appreciated xx

Thank you and I’m so sorry. I take one day at a time my husband has had treatment but I think there’s no more as he had another type of chemo in December round one but then caught covid and was hospitalised for 4 weeks was touch and go at beginning as they told me they wouldn’t intubate him or resus him due to the tumour which was hard to hear but he pulled through. Not heard if they’re gonna risk him having another round with the risk of getting covid again so may just be palliative care. We have a Macmillan nurses at the hospital which are great. They’ve given us at times prognosis and he pulled through each one. First was he wouldn’t make the first night after he callapsed when they found the tumour (May ‘18) then it was when we were thinking of getting married that he wouldn’t make it till Christmas ‘18 (planned a wedding in 6 weeks lol) and he still here fighting. Hear if you need to talk xx

Must be really hard for you. My mother isn't strong enough for any treatment so it's only Pallative care, doctor has said weeks/months rather than years . They've given her Dexamethasone and she's got her mobility back , she walks with a wheelie, she's a very stubborn person and we both believe the mind is a powerful thing , which we rarely use to it's full capacity, everyday she meditates and pictures moving up the body inside to the tumor and imagining it shrinking , I believe she will surpass any prognosis as she will never give up hope . I bet the wedding was a blessing for you. My mothers 83 so prognosis is poorer I believe with age. I will think of you and your husbands tumor when I meditate with her , don't ever give up hope . I'm also here if you wish to talk , I am happy to give you my phone number so if you want to message me anytime you can. Thankyou for replying xx