Hi Mark hope you and Allison are ok well as ok as you can be. I want to say thankyou so much for your informative reply.It was really helpful for us. It's all new this for us their hasn't been cancer in both sides of the family's. We don't know what to expect. It sounds like you have been through the mill. I admire your strength I hope things work out good for you and Allison. I will keep in touch you both take care and once again a big thankyou Marie and Ian 

Hi Mark and Katherine  

Hope you both ok well as well as can be under the circumstances. 

It sounds like you have coped quite good with the chemo.

It's been really tough on Ian so he has has first 4 hour drip Friday last week he seemed ok on the Saturday tired but understandable. But by the Sunday he was ill felt sick he had a gagging feeling had hiccups bad also diorea. Just basically uncomfortable. I phoned the cancer nurse on the Monday she got intouch with the ongulist he recommended Ian had a ct scan asap he said it is very very unlikely but he wanted to check it hasn't spread to hes head.Getting told this was really worrying Ian was fine about it he knew their was nothing wrong with he's head. Also the ongulist told him to stop the chemo tablets. He went for ct scan still waiting on results but the cancer nurse said that the radiologist would have picked up anything serious straight away. It's taking so long for results because of Easter holidays.

So we are abit up in the air at the moment.We don't know when he will have to go back on tablets.

He's next cycle is booked for 23rd  April.

I feel abit anxious I feel like the tablets may have been working but now he's stopped taking them what's going on with he's stomach.

I suggested that Ian should have full ct scan to see what's going on hopefully that will be next week.

He's ongulist will be phoning him on the 7th so will have to see what he says.

I really thought by now the side effects may have subsidised and he would have built he's strength up for next cycle. 

He has lost a lot of weight he is eating but he can't eat regular amounts as he feels full straight away.

Ian didn't have the sensitivity to cold. Mostly the nausea for him.And that gagging I mentioned.

It was the gagging thing why the ongulist wanted a ct scan because it was a unusual side effect.

So basically it's a waiting game see what the next move is.

We did manage a walk along the pier at the beach which was nice the other day by the time we got back he was worn out but he enjoyed it.

I'm trying to look after myself but I feel guilty having me time I'm always on red alert in case Ian needs me.

I must admit I do feel very lonely at the moment.But will just have to get on with it.

I want to thankyou for taking the time to send me a message 

Hope you can keep intouch thankyou to you both take care Marie 

I'm so sorry I said Katherine instead of Allison so sorry 

Hi Marie

Sorry to here about Ian, I'm sure it's going to be ok they will look after him, it's good they got the CT scan quickly and the Nurse is right, it was the radiologist who immediadtely got me called to surgery after doing my scan that day, never weighted for full results, because of what he could see.

Stay strong and follow the Dr's advice.

all the best

Mark & Allison

Morning all

I can relate to so much of your conversations . My husband of 35 years tomorrow was diagnosed with pancreatic cancer aged 62 by ct scan on 1st Dec. Chemo was delayed as biopsies could not give a definite diagnosis but eventually adenocarcenoma cells were found when the biopsies were reviewed by another hospital. Until recently its been me and him due to covid he's not had an easy ride and second chemo delayed with nausea sickness diarrhoea and then infection which Ihad to ring for ambulance in middle of the night. He is now in the palliative care ward of our local hospital after being told his kidney function has been affected by either the infection  or  chemo or i think the gentamicin possibly and they were unable to find source of infection and he may have weeks if not days left. My grown up children are now supporting me My daughter lives abroad so has one day left of travel isolation  before she can see her dad. Visiting is limited due to covid but better than no visiting as was a little while ago. I too feel I am grieving for him while he's still with us anything starts the tears. I just wish I could turn the clock back. Thank you for reading my post it does help  Think the worst but always hope for the best.

Hi Mark

Hope you feeling ok 

Ian's ct head scan was clear thank God.

We spoke to he's ongulist yesterday he said he was happy for Ian to go ahead with next cycle if he was.

Ongulist wants to administer abit less chemo than before. He also wants to change he's antisickness meds.

So we hoping he may cope abit better than first cycle.

Ian just wants to get on with it now. I'm so proud of he's strength it's just typical of he's character he won't let anything beat him.

He's weight has stayed the same which is good. He has been trying eat little and often.

He seems to be sleeping ok.

So we ready for next cycle tomorrow.

How have things been for yourself ? 

Hi Marie

Im so pleased to here your news and hope this new cycle goes well for Ian. Not much to moan about, it has been harder than the first cycle but Im ok and looking forward to Tuesday, as I get a week without drugs.

Thanks for the update and we will be thinking of you both.

All the best

Mark & Allison

Hi Mark 

              Thankyou for your reply. Hope you feeling abit better.

Ian had he's first chemo on Friday long day for him 8 hours. He was ok when he got home apart from been very tired.

He has been ok no nausea hiccups abit but mostly it's the shaking this time. He has still got an appiete which is good. So we keeping our fingers crossed that he doesn't have bad side effects like last time as he's chemo drugs have been reduced.

He's weight is staying the same which is good.When he first got diagnosed he was 10 kgs lighter.

I hope you enjoy your free week from Tuesday. You both take care and thank You again for staying in touch  

Marie and Ian 

Hi Marie

I hope Ian's doing ok and the chemo is not causing him any undue problems.

So I got a good news, they told me that everying was going really well, so they were going to increase my meds by 20%. Somthing they said they probably wouldn't do, then told me, I was having 4 cycles over 3 month's and so I had been mistaken it was 3 cycles. That was ok, I looked at my letter and it does say 3 months, as you know so much information, you can get confused. The down side is it means, it will be end of June not mid May before I can see my mother. 

Then on Tuesday morning I heard my mum was in hospital, having had a heart attack, followed by a call a couple of hours later from the hospital, telling me my bloods weren't upto chemo, so not to attend Wednesday and I have to wait a week. So feeling a little delated but have to stay positive as they are the experts and will get my treatment right but another week before I can get out.

Anyway hopefully Ian has been ok on this cycle, which should be ending shortly and he has a good week off before the next.

all the best

Mark & Allison