Coping with husbands terminal diagnosis

Hi

I have looked through many postings over the last few weeks and shed many tears reading and understanding everyone's feelings and circumstances. 

My husband became a bit unwell really quickly in the summer, he was losing weight drastically and hardly ate anything. I finally got him to the GP for only the 3rd time in 30 years and the gp organised for an endoscopy. We were told straight after he had bowel cancer and then had to wait for a scan. My husband had his scan and we were told on the 5th November it was terminal as it has spread to his liver, the prognosis 6 to 12 months. He immediately that day was taken to have a stoma fitted as the tumour in his bowel was stopping him passing properly. 

He began chemo 4 weeks after so mid December and is having fortnightly sessions with a 48hr pump. The weight is still coming off him even with supplements, its a fighting battle each day to get him to eat. I feel so angry sometimes at him for refusing the supplements and not eating and then feel like crap cause I feel angry at him. He's less than 10 stone now and just under 6ft he's aged 10 years in 6 months and there is nothing left of him.

I have silently cried myself to sleep every night since November I try to be strong but inside I feel empty, all our future plans gone. I feel robbed of my husband and robbed of my future. We have the doctors who look after him but have had no other offer of help and support. 

I am off work to look after him and I do worry about future finances etc and what will become of me when he's no longer with me. We have been married 29 years. He is 65 and I am 50. We have 2 grown up children and a foster daughter who is 13. Hes my best friend.

I really don't know what to expect and there is no way he's going into a hospice or hospital he wants to be home, there's no care plan in place and that worries me because I want to stick to his wishes. I feel out of control out my depth anxious upset and angry...not at him this horrible bloody disease

  • Hi, I am so sorry you are in this awful situation, like so many of us sadly. I can relate to so much of what you are saying, its very difficult to see our strong fit husbands weak, ill, and suffering. It is also hard to accept that everything has changed - it robs you straight away of so much, I miss even just having a normal dinner with my husband, like yours, mine cant eat and is losing weight rapidly.  We also have an age gap, I am 49 my husband is 63. Its so difficult also seeing the fear in our childrens faces, thats the worst part for me. Am here anytime if you want a chat, hoping it helps to know others are in same position and understand how hard this is x

  • My heart goes out to you.  I can empathise with your situation completely, it is so similar to my own & my hubby's.  He was diagnosed with esophagal cancer just after Christmas & on Friday we found out it is incurable.  Prognosis 12-18 months assuming chemo is effective at slowing it down.  Our world has fallen in on us.  I know it is early days, & maybe with time we'll adjust, but right now we feel robbed, raw, & despairing.  It is so so hard to try to find any positives, & I am so ashamed that I am not coping better, that I can't be strong for him.  He is 63 & I am 50, we celebrated our 30th wedding anniversary in December.  & with Covid, & not being able to see people properly, or hug our friends & family, not being able to go out to any of our favourite places, even though it might be the last few months of his life.  I wish I had words of hope & strength for you, but I don't.  But if you need to reach out, please don't be afraid to share your thoughts & fears here.  There are people here to listen to you.  Sending hugs. x

  • Sending you a big hug too, I know what that diagnosis feels like am so sorry xx

  • Im sorry to read this. Could your Gp complete a ReSPECT form for him and that details his wishes and ensures that he is able to tell everyone what he wants?  That's what we did for my dad as he didn't want to go back into the acute and whilst the nurses wanted to admit him the form ensured it couldn't happen and we were able to get admission to a hospice. 

  • Gengen, and all, my heart goes out to you all,

    May 14th 2019 was when my hubby was diagnosed with advanced kidney cancer spots on lung, I was absolutely gutted, crying, sobbing in private, putting a brave face on to others, hubby was losing weight and wouldn't eat or drink the supplements, I started making banana splits small amounts 4 or 5 times a day and he started eating, then mashed potatoes with plenty of butter and milk and using a ice cream scoop to serve the potatoes as it looks smaller on his plate, cutting his meat, fish fingers anything to make it easier for him (doing it in the kitchen making no fuss)

    Have you seen an occupationist therapist who can help get reclainer chairs, perching stool for bathroom toilet aid, all these help as our OT told hubby to keep his energy for things he enjoys doing. Macmillans also helped with financial worries and counselling (for the carer as hubby won't go)

    Hubby has just started on cabometyx (immunotherapy) today as the last lot of treatment had stopped working and is having radiotherapy next week on his hip (cancer now spread there) but take one day at a time back in May 2019 I never believed he would be still with me.

    Please take care