Hi all. This is my first post & first time thinking about joining something like this. So here goes..
Nearly 9 weeks ago my nan fell & broke her hip after her left leg stopped working weeks before, after having a ct scan, 8 weeks today she was told she has a brain tumor on the front right side of the brain, hence why her left leg isn't working. She was also told she had broke her collar bone horrifically (however the pain in shoulder started the saturday before the fall on the wednesday) She was told it was small but that is it. She isnt just my nan, she is my 2nd mum, she is my everything. 8 weeks down the line she has had a biopsy on her lung as they saw some shading on an xray & they say the brain is secondary so they need to find the primary. She also had to have an emergency dr app last Monday because horrifically bruising had come out all across her boobs & under her armpit & some swelling & this nurse that came in said it wasn't normal & it needs looking at so the dr sent my nan for an xray on the collar bone but he wasn't convinced it was from the broken collar bone so he wanted nan to have another mri scan of full body before this Wednesday as this Wednesday is the day the neurosurgeons/consultants/specilists from 3 different hospitals are meant to be getting together to discuss her biopsy results & everything together to see how they go fwd. However over this last week my nan has deteriorated so much... she has excruciating pain in lower back, in shoulder - the swelling has got worse & its rock hard & looks like a mass. She can't get out if bed because of the pain, she's got incontinence urinal & bowel. Its horrendous. The dr has uped her Zomorph from 60 to 80 baring in mind she was originally on 40 but it got put to 60 two weeks ago when pain began in back. My dad called the nurse today & she said that was a v high dose for her to still be in pain so he took her to a&e & they have admitted her tonight. They are doing a scan on her back tonight then hopefully mri tomorrow, they think she has fractured part of back!!!!! Us as a family think primary is in lungs & It has spread to bones. I have 3 young children - 11, 8 & 5, my 8 year old is really close to my nan & its upsetting him as it is knowing she is poorly & can't walk etc - I havent told them about the cancer diagnosis but I feel the way things are going & her deteriation it is a conversation I will have to have soon with them but I dont know if/when or even how to have the talk? I don't want to say anything until we know the full story. I've never had to go through this. Any advice would be appreciated. I feel really let down by the hosp, I feel like she's been forgotten about. We are no better off with our knowledge now than we were 8 weeks ago when we got told the devastating news. As well as my gramp & my auntie i have been looking after her & her home twice a week every week. Its mentally draining for me to see her like this.
