Hello, dad 54 recently diagnosed Brain Metastasis

Hello, 

I've been lurking the forums tonight, followed a beautiful thread between two young women going through the same experience; and wondered if there is anyone out there who could hold my hand? 
 

On Nov 26th my dad collapsed at work with a suspected stroke and was rushed to hospital. 
 

Passed all cognitive tests, was treated for an abscess in his tooth on IV antibiotics and steroids. they said it could have been the infection raging affecting serious nerves in the face or travelled to the brain and he was lucky.
 

Offered MRI that day which I later found out he refused. I think he knew if he got in that machine his life would change forever. 
 

Fast forward to the next day they said they couldn't discharge him without MRI. Due to covid he had to go all by himself; they found secondary brain cancers, could not determine primary, and told him so. 
 

I called my stepmother to see how he had gotten on and she said it's not good news. I went up to see her and she told be secondary brain cancer - which I immediately understood was not good. 

The day after that they did a second MRI and found oesophageal, stomach and liver cancers. 
He then had biopsies (camera down throat job) from his abdominal stuff.

They let him out soon afterwards and I saw him the next day. He told me not to worry it's been caught early!  (I think not) and that he was too busy to sit around watching Christmas movies, don't fuss me I will see you at the weekend as usual. He basically threw me out in the kindest possible way. 

He seems to think he is going back to work on 14th December and had organised a driver at work to take him pootling up and down the country where he works in heavy switchgear as an electrical engineer. I fear for the substations - if there's rolling blackouts we know why. 
 

I'm just finding it all very bizarre. He is carrying on regardless, I'm not expecting him to sit around and mope and wait to die but some acknowledgement that I'm not an idiot, I love him and I'm concerned would help. 
 

I have 2 siblings who are in their 20s and naive. 
 

I'm so confused by his reaction and the reaction of my step mother who just constantly blames him for making poor lifestyle choices - bad diet, drinks too much at the weekends doesn't look after himself. 
 

If you made it this far hello! 
 

Has anyone else come across a reaction like this from a parent newly diagnosed? 

Would love to hear from you 

Gem x 

 

  • Hi Gem,

    Firstly welcome to Cancer Chat and I'm so sorry to read about your dad. I can certainly understand this reaction causing you some upset and maybe confusion.

    Everyone deals with things in their own way, so maybe this is simply his defence mechanism and his own way of just trying to carry on and deal with it in that way. It is possible of course that his attitude and approach will change at some point.

    Hopefully your siblings will find out soon and that you can then speak to each other about this for support. I hope you also have others you can speak to about this - either way, we're always here for support on this forum.

    I know there'll be others here who have been through, or are going through, something similar - so hopefully you'll receive further replies soon. If not, do browse the forum for other relevant discussions to connect with others that way.

    Take time among all this to keep looking after yourself too.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Hi Gem, 

    I am also a forum 'lurker' but felt compelled to reach out as although I can offer no guidance (I am muddling through the best I know how), you mention it would be nice to have a hand hold and I feel similarly!

    My dad has stage 4 cancer (recently spread, diagnosed with primary in May this year). 
     

    My dad has worked throughout diagnosis and treatment (albeit from home), and until this recent news of spread had carried on with a business as usual attitude despite being extremely unwell.. 

     

    Would be great to connect on private message if you fancy, will send you a friend request but no pressure. 
     

    sending love and empathy, this situation sucks.

    x

  • Thank you for taking the time to reply to me. 
     

    What an amazing job that you do. We have had some more news and my siblings are now aware. 
     

    Gem x 

  • Hi Harmony 

    Thank you for taking the time to reply to me. 
     

    I am happy to be a hand holder as we navigate this whole situation. 
     

    As Monday 14th approaches I'm pleased (am I?) to say my dad has realised his limitations and spoken to Macmillan about stopping work. So no major electrical disruptions anticipated. 
     

    Moderater Ben was right attitudes can and do change as things progress. We've had a chat today about the practicalities of Christmas Dinner for example with his oesophageal cancer he can only eat little and often so the Christmas dinner is going to be a hot buffet instead, in PJs come and go as you please.

    I must say that takes the pressure of me as well to make THE perfect (last) Christmas dinner whilst he's in the planet! 
     

    I hope you are doing as well as you can be please keep in touch 

    Gem x 

  • Hi Gem, 

    Apologies for the delayed response here, it has been a hard few days. Nothing much has changed to be honest, my dad has started chemotherapy, so again we go, the fight moves along. Palliative treatment in order to try and gain a few months life. 

    How is your dad doing? Is he undergoing any treatment? 
     

    I really love your hot buffet idea, sounds like a great compromise. On our side we are all (me and my partner, my step mum and dad, and my sister) bringing a course to the meal at my dads. So I'm up first with a starter, it will be small and something my dad loves and then we will have a long break before a small portion of main and then the same for desert - might be an 8 hour affair if I'm honest but we will love the time together regardless of situation I'm sure. (I will likely drink a lot of coping wine)
     

    My dad was very sick last night due to chemo so we are hoping the hospital will prescribe some stronger anti-sickness to try and keep his weight/strength up somewhat. It's a minefield! To think this time last year he was saying how much he needed to lose a few stone as was overweight it is almost unbelievable.

    Really hope you are holding up okay and do keep in touch. Sending love and positive thoughts.

     

    Harmony xx