Getting so frustrated

Hi all, probs a bit of along post/rant

My Dad got diagnosed with Skin cancer after he found a large lump growing from the side of his foot. Fast forward to late October where he got the news that no treatment could be done and the cancer is incurable. At this point it had spread from his foot, to his stomach and his lungs. He lives on his on in Scotland, I am based in south of England and my sister stuck in Austrailia due to Covid

At that point he was given a prognosis of a few weeks. After a very emotional discussion my partner and I decide to rush up the 8 hour drive to my Dad's as the suspected few weeks was about up. Packed very few things as expected we wouldn't be in Scotland long due to the phonecalls we have been getting of how bad my Dad was.

A month later I am typing this now very frustrated. Hospice nurse phones once a week, my Dad has district nurses in 3 times a week to change the dressing on his foot where his tumor is but no prognosis in site.

Asked hospice nurse about how long my Dad has and she says she cannot say. Frustrating for all the family but especially my Dad as he was all ready to die at peace with himself and for me my Dad died several weeks ago and I have already grieved for him it feels like.

My Dad has the hospital bed in the living room where he doesn't sleep at night because he spends the majority of his day sleeping on the sofa. He is popping nearly 20 pills a day with all the antibiotics, morphine, painkillers and anxiety tablets that he takes.

I am getting worried that as time goes on that the doctors had got the prognosis very, very wrong. He is still mobile though wobbly and gets out of breath going from living room to toilet (unsure if due to cancer, the fact he smokes 40 cigs a day or his COPD). Still eats and drinks as he normally does so pretty much how he has been for the rest of the year.

I am mainly worried about my partner and I's sanity. We are still working from home (in my old childhood room with him on a desk I had at uni and me on my single bed). They have been great saying to take time off when I need to but if I dodn't have my work to distract me, I think I would go insane! My Dad's smoking is now really getting to us as we are not smokers and starting to feel ill from it. I am getting sleep at night but just waking up mentally exhausted and the things we would normally do for relaxtion we don't have with us because we were told it was only a few weeks!

Apologies for the long post, just feel like I really needed to rant as my poor partner has been getting the brunt of everything. May end up posting more to get my feelings out.

Thank you for your time, hopef you are all coping okay <3

  • Hello HaylzRandom,

    I'm sorry to hear about your dad and how the situation is affecting you. It's important to discuss all these concerns with your dad's medical team. The may be able to point you to some support in your local area. There is some information available here that might help with coping. It's also important to take care of yourself and take time to calm your mind. Mindfulness can help with this. 

    Best wishes,

    Moderator Anastasia

  • Hi HaylzRandom,

    Just wanted to pop on and say I hope you're ok. We have been in a fairly similar position, although it's in our own house. When we received my dads diagnosis we insisted he moved in (he couldn't eat anything but purée), but the last few weeks he has gone downhill and is currently in hospital and then possibly nursing home care :0( 

     

    I can't really offer any help to say what happens, I lost my mum to cancer 3 years ago and it was a very different experience to this...so I think it's different for everyone. Sometimes the body carries on and sometimes it just can't any more. What I will say is that for us, my dad has rapidly gone downhill and is now bed-bound, and we have just been told we have weeks left. I know it's a huge drive but could you maybe give yourself a long weekend back at some point, you could arrange for District Nurses to come in to do the caring while you're away...or maybe discuss some respite care with them so your dad just goes in for a week? It does make a difference to have a little bit of time back to yourself. 
     

    The other thing I would advise is that you are completely honest with anyone helping. We had District Nurses that came round once a week, but it was only when my stepdad was admitted to hospital that things have really started to change. We told the DN that we were really struggling and they did try their very hardest to help - it was them that told me he needed to go to hospital as he had chronic constipation which turned out to also be an internal bleed (Macmillan just asked me how I felt about inserting a suppository up his bum...!!). 
     

    Try as much as you can to maintain your own sanity too. Go for a walk, maybe do go back for that week/end and grab some stuff to help you when you're back...and maybe chat to your dad to see if he could smoke in an allocated area of the house while you're there to help? 
     

    Know how stressful it is, keep going xxxx