Mams condition rapidly deteriorating

My mam has advanced breast cancer after being diagnosed in October 2018. She has continued to lead a relatively normal life doing things daily going out ect. Mam is never one for talking about her cancer and had previously hidden her lumps for probably many years. She has always suffered with anxiety specifically around doctors, hospitals and anything medical. Unfortunately her condition has deteriorated rapidly over the last 5-6 weeks. I found out off her GP that the cancer has spread to her liver and bones. She has became confined to her flat. Her GP referred her to Palliative Care Team however I have since found out they contacted her and she said she was ok and said she didn't need help. She has suddenly become very confused and pretty much stopped eating. I have just done a phone assessment with social care and had to make sure I was there or she would of said she dosen't need help. She is a very proud lady and over the last couple of weeks I have noticed she has soiled the carpet quite badly and tried to cover up with mats ect. It devastates me to think of her on her hands and knees trying to clean up as she lives alone and gets little help of any other family members I'm not sure if because of Covid but everything seems to take an age to get sorted out. I used to go with her to consultant appointments but because of Covid her appointments started being over the phone so am unsure other than what her GP has told me her prognosis. I am absolutely drained with everything going on and even when I do get a good night sleep I feel shattered. Unfortunately this has happened whilst my mother in law has just died so my children are already grieving the loss of one grandmother and I am shielding them from my mam partly so they don't see how poorly she is. If anyone can give any advice of what else I can do it would be much appreciated. I have had to go on the sick in relation to work as I cant concentrate on anything else and also being fearful of having to self isolate as I work in a high risk environment in relation to Covid. I knew this was going to be a difficult journey but wasn't prepared how quickly things have deteriorated. 

  • Hello Mickyb5126

    I'm sorry to hear about your Mum's diagnosis and that her condition has started to deteriorate recently. It sounds like it's a really difficult time for you all. 

    You mention that you've spoken to her GP who was able to give you a little more information about her diagnosis. Did you mention how Mum was struggling and your concerns to the GP? I think if you haven't then it would certainly be a good starting point to talk to them. 

    Hopefully the social care team will be able to offer Mum some support that she is open to accepting. Caring for a loved one who has cancer is difficult at the best of times. Add into that you are also dealing with the recent loss of your mother in law and all the difficulties that Covid is bringing and I think it's understandable that this probably feels a little overwhelming. 

    Macmillan have some quite comprehensive information on their website that you may find useful. I've linked it for you here

    They also have a helpline you can call for support and advice however if you'd like to speak to one of our team of nurses you're most welcome to give them a call. They're available Monday to Friday 9am to 5pm on 0808 800 4040. I know many of our members here will agree that talking to someone can help on lots of levels. 

    I hope that Mum does begin to accept some help and support and that the situation improves for you both. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Hi thanks for your reply. I spoke to her GP earlier today and am meeting with her at mams flat tomorrow and another referral has been forwarded to Palliative Care so hopefully they are going to contact me in relation in making an appointment to see Mam. 
     

    Thankyou

     

    Mick

  • Hi Mick

    I'm glad to hear that you've been able to get some things in motion for Mum. Don't be afraid to give our nurses or the team at Macmillan a call for some support for yourself if needed. 

    Best wishes, 
    Jenn
    Cancer Chat moderator