My husband was diagnosed Feb last year - grade 2 stage 4 small intestine primary spread to peritoneal cavity,omatum, liver, femur and hip bone and mediastinal node. He had emergency surgery for a bowel obstruction in Dec 19. Only treatment is monthly Lanreotide. He hasn't reacted well to his diagnosis...  doesn't understand or ask questions on his diagnosis and thinks ( from things he has read on google) that he has a couple of years to live. He drinks a bottle of vodka a day. He is very angry and to be honest is awful to live with.... I have read of carcinoid rage! I know people can live a long time with NETs but I would like an honest appraisal prognosis wise due to the spread and his drinking habits. His NET team won't oblige and we have had limited communication since Covid.... his next appointment is March. I should probably say he is seemingly doing ok at the moment all things considered but he will not talk about his condition or how he feels. He is taking no pain meds.