Extremely Worried

Hi, my husband had a melanoma cancer which started in his big toe, under the toenail. The cancer spread to the lymph nodes in the groin and these were duly removed, as was half of the toe. Following a  delayed C.T. scan, I can only assume the delay was due to Covid, it was discovered that my husband had a nodule on the lung which turned out to be the melanoma again.  No treatment was given , apart from the removal of the nodule on the lung. The cancer specialist had signed my husband off prior to this. The nodule was removed and it was confirmed that,yes it was the melanoma. He then had another C.T. scan, and it was discovered that the melanoma was now in both lungs.  This morning, we received a letter for a telephone consultation for next Friday.  My husband needs treatment, not a chat over the phone, can they refuse treatment because of Covid and why was he signed off at a crucial time. I am thinking of suing the hospital for neglect of duty of care, in this case, I am fuming......and feel badly let down..

  • Hi Carol59,

    When you say the 'cancer specialist' signed your husband off, was this the oncologist? Apart from groin & lung nodule removal, was any adjuvant drug treatment discussed? From what I can assume, the groin node involvement meant that your husband was Stage 3 and that should trigger a talk about drug treatment. Once the lung involvement occurred, regardless of whether the nodule was removed or not, your husband would now be Stage 4 and that would definitely mean a drug treatment plan should be put in place. If the cancer specialist was the oncologist it seems to me that your husband was 'signed off' by them far too soon ('signed off' means they have no further involvement but your husband's care would be taken up again either by a dermatology or Plastic Surgery consultant). 

    I'm guessing that the telephone consultation is to discuss the treatment plan that they now are arranging. If I were your husband, I would ring the department that has sent the letter & ask the purpose of the phone call because he feels he has been left high & dry with his treatment so far. It may well be that there has been a breakdown in communication between the departments which has led to the 'signing off' which needs to be fully explained & you need to feel confident that he is going to get the treatment he needs. They can't refuse treatment due to Covid so please don't worry about that.

    Good luck and please let us know how you get on - I hope the situation is made clearer before Friday,

    Angie (Stage 3 melanoma patient)

     

  • Hi Angie, thank you for your reply and advice. I will certainly do what you have advised and contact them about this.  Yes, it was my husband's Oncologist that signed him off and we have since only had contact with the Dermatologist.   I will keep you posted and let you know how we get on, it will have to be Monday, now, before I am able to contact the right department.  

  • Hi Angie, my husband has been given Immunotherapy to treat his lung cancer. We have had the first session of treatment and the second follows on the 2nd of December, it's not without its risks but he's willing to take them, if it means an extension of life. Apparently it has a more successful outcome than Chemo or Radiotherapy, if he can weather any side effects, which can be fateful in some cases, so far so good, we are keeping our fingers crossed and sending a little prayer winging its way to heaven..... how are you? ......