anticipatory grief

My amazing wonderful 75 year old father has been diagnosed with late stage lung cancer this week. We had no idea; it is like a train exploded in our hearts. I cannot breath, eat, think. I love him so much. He is in hospital and they delivered a bed to my parents home for him to go back to for palliative care; this is so unreal. My poor mum was there alone when it arrived. He is desperately ill.

Dad survived a heart valve transplant 4 years ago, encephalitis 3 years ago, and stage 1 malanomas last year. He and my mum thought they were going to get more time together. They have been together for 55 years and never loved anyone else. She is devastated, we are all utterly devastated.

He nearly died in passed years, but the power of hope protected us for the agony of this. We are not ready and we want him with us.

I do not know how to deal with the pain and fear. I cannot imagine getting through this or a world without him. He is my best friend. 

If you have any advice for me and for looking after mum, I would be so grateful.

  • Hi. As far as your dad goes just make sure he has a good pallative care package. From district nurses to care nurses as the district nurse will manage his pain if he has any. 

    I have recently lost my husband and all I can ask from my children is for there company as I need it. Remember your mum will have her own grief but she is still your mother so she may want to help you through this. You can all be a great support to each other. 

    Take cues from your dad now it is all about his needs but consider yourselves, often carers get lost in all that is happening. I hope you find the strength sometimes it just appears from nowhere and things just fall into place. 

    Just live in the moment for now be there as often as you can but also take time for you. Have that discussion if you can how you feel how much he is loved. It can help ease this bloody difficult time. 

     

  • Hi

    I am so sorry to hear about your father, I understand exactly how you feel and send you my best wishes. My dad also was diagnosed with Stage 4 lung cancer, also in his kidney and a lymph node. I cannot bear the thought of him leaving us, he takes up my thoughts  every minute of the day. My mum isn’t particularly well and the upset is showing in her, they too are eachothers lives 70 years of it, she won’t cope without him We as a family visit more or less daily He is very ill and he struggles to eat much. The pallative care nurse comes to see him checks his meds and is very good he had a short course of radiotherapy which has helped his pain. I am trying hard to be stong  but its very hard.