Hello Sammy4,

Welcome to Cancer Chat and I'm sorry to hear about your fiancé. Here is some information that I hope will be useful and it's important to share your concerns with your doctor, as they will be the best person to help. If you ever need to talk to someone, we have a team of nurses available Monday to Friday, 9am to 5pm. You can call them for free on 0808 800 4040.

Best wishes to you both,

Moderator Anastasia

Good afternoon I have GBM4 diagnosed July 2019  I had the operation the same week. I have had no effects since and feel fine, l. Everyone is different. I am aged 57 and it is a shock initially to my family. 

Hi I'm so sorry to hear what your going through. I'm not effected myself but my dad is. He fell down in super market 3 years to the day and found brain tumour at 54years. It was so difficult and everyone panicked he wouldn't make my wedding in the April following. 

He did and rocked out to status quo. 

You might be wondering why I'm posting this , its because even though we thought it was the end of the world it wasn't.  He thought treatment was pointless.

After a year and bit of being stubben and being asked to have surgery, chemo and radio. He had a seizure and I was 6months pregs with 2nd grandchild that he changed his mind. He had open surgery for 7 hours, awake. 7weeks of 5days radio and then chemo. He worked new job, or he would go insane! His words!

Mam wouldn't let him climb scaffolding and build.  He looked better shape than ever.

Point of my post(very long winded)  don't hesitate too much about treatment I wish dad done it early even he did.

No not curable, but been pretty good few years. 

57 is way too young for my dad or any of you.we still celebrated Christmas this year which they told us he wouldn't. 

Wow that felt like a weight off

Would love to chat. 

Morning. Thank you for your kind words. I am pleased your dad is ok. My wife is only just releasing my toddler reins as she still thinks I need supervision ha ha. I was going to an awake craniotomy but the surgeon said it wasnt necessary as the dye had highlighted the full tumour. My operation lasted 4 hours, unfortunately I had a heart attack 12 hours after the operation so spent 3 weeks in hospital before returning home. My last phone consultation with my oncologist was 23 December and he advised no change and stable so good news for me. My next MRI is March so upbeat now. 

I had no previous symptoms until the day I had my seizure and have felt good since. I do yoga and have my own gym in the garden so exercise regularly. Only down side is unable to drive until this September as licence was suspended for 2 years. I am now medically retired as I cannot return to my old job (I was a customer relations investigator) but due to my memory, I lose the train of thought sometimes and not fair on customers so I gave it up. 

Happy new year to all your family and keep in touch if you want to chat. 

Afternoon, my Wife was diagnosed with grade 4 Glioma last September. The tumour was removed within 4 weeks. She then had 6 weeks of chemo and radio, chemo was stopped after 4 weeks as it was causing problems to her blood. No more chem will be offered because of the adverse effects she will suffer. Had the results from last week MRI on Monday. No cancer cells were visible at all, next MRI etc in April. Apparently this type of cancer is incurrable so we have to be on our guard. 

My Wife is now taking the next few months to regain her strength and allow us both a break from anything hospital related.

Only advice I can offer is this, have treatment, all that if offer as soon as possible, keep positive however difficult life becomes (and it will, trust me). Keep everything crossed at all time.

My fiance is 28 and was diagnosed with GBM (grade 4 glioma) 11 months ago. Median survival is only 14 months or so and it is considered universally fatal and while his oncologist has told us that hes never given us any prognosis as everyone is unique. My partner maybe more so than usual as he actually has multiple brain tumours, I think seven or eight? One was removed through a six-hour craniotomy for diagnosis in March. 

He's definitely slowing down due to all the treatment, sleeping more and quite fatigued most days of the week. But he still enjoys a laugh and playing his video games and has no big issues with mobility or cognition, just a bit of a tremble in his hands and occasionally it's hard to follow his train of thought.

I dont know what type of cancer your partner has but I can speak about glioblastoma - its considered the most aggressive brain cancer but there are long term survivors - I've read of many people living five, even ten years. Theres even one lady who was diagnosed in 2001 and is still with us! The uncertainty of not knowing how long my partner has left is horrible so we just try to take things one day at a time. Life will never be the same as it was but there's good in this new life, too. And his last two scans have been stable - no tumour reduction, but a "florid" reaction that indicates cancer cells are being killed.

I hope you've been well since you posted and want to say to you and anyone else reading this who can relate that my DMs are always open!