Hi,
My beautiful mum has glioblastoma, she was doing brilliantly for 2 and a half years and then in March/April the cancer aggressively started to grow and there was nothing the NHS could do.
We were told that it was the end. Mum has now been bed bound (at home) since April, ever so slowly declining. Shes only 57 and Im 24. I had to temporarily leave my job as I have become her main and only carer as it was her wish to pass at home.
Ive researched so much about this dreadful cancer and I cant find anyone else out there who has held on this long like my mum has but its just absolute torture to watch. She hasnt been able to walk or use her right side for 5 months now. Shes just been stuck in her hospital bed this whole time. The last month she hasnt been able to talk either so you can tell shes just so frustrated that she cant communicate. She can wake very confused as well and I really have to try and put on a brave face.
I honestly dont think theres much of my brilliant mum there anymore. I feel like Ive already lost her and Im so struggling with that knowledge. A few people have said Ive already begun grieving.
Shes the only parent I have and she deserved so much better than this. Its a truly awful cancer, it takes bits of you peice by peice, I know it and Im pretty sure my mum knows it too.
I miss her voice, her hugs. Macmillan cant give me a timeframe as they say glioblastoma works differently all the time.
Im so exhausted caring for mum but I wouldnt have it any other way, Im so worried to be in a world without my mum in it. A mothers love is so different to anything else
I guess Im just looking for anyone out there who has experienced something similar timeframe wise?
Thanks,
Hannah
