Dad has terminal cancer

My dad was diagnosed with terminal cancer during lockdown, it is secondary liver and they are unsure whether its primary in the pancreas or colon. He can't get an MRI because he has a pacemaker.

 

He started palliative chemo this week and hasn't been too bad, however today had breathlessness and pain in his chest. My mum has taken him to a&e after phoning the chemo helpline, so am currently waiting to see what they say.

 

It is really sad and scary at the moment as everything is so new and I am still getting used to seeing my dad in this vulnerable state. I am 28 and so heartbroken to think he won't be there in the near future.

 

I find it difficult at the moment as it feels like we have no idea what to expect with his chemo treatment, how he will react, and if it'll be different each time? I am struggling to know how to deal with this immediate uncertainty. I am scared to see his quality of life decline infront of me and not be able to help. I just don't want him to suffer.

  • Hi Ot1992, 

     

    I'm really sorry to hear about your dad and what you must all be going through right now. 

     

    I lost my dad to cancer three years ago, when I was 27. He'd actually been given the all clear then suddenly they found something again and he was immediately diagnosed as terminal, then died a few months later. I still remember getting the news he was terminal, and feeling all the emotions you have described. Every situation and every person is different, but as someone who's been through something similar and come out the other side I wanted to share my experience in case it helps at all. Most of all I want to give you hope that you CAN get through this.

     

    So, my experience was that it was incredibly difficult, particularly seeing Dad's quality of life decline. I experienced anticipatory grief (google it!). I sought all the help I could (e.g. accessing counselling - I only had 1 session but it helped) prioritised eating heathily, enough sleep etc. I also spent lots of quality time with my Dad and we tried to have the best few months possible, making memories. 

     

    My dad's last few days were in a hospice, where he passed away. It was a very difficult few days, and you really have to dig deep for your own inner strength and be kind to yourself. When Dad did pass away, it was very peaceful and the biggest emotion for me was actually a huge sense of relief that he was no longer suffering. Again, everyone is different, but it's something that surprised me because I expected it to feel like my world had fallen apart, but actually the original terminal diagnosis had already done that, and I actually felt quite calm thinking he was now at peace. 

     

    That said, it was an emotional rollercoaster - I'd be fine for a bit then burst into tears and the emotions would all come flooding back. Over time, this happened less and less. Gradually, you start to feel more about to continue with life - but that absolutely does not mean forgetting about your dad and what happened. Instead, you grow stronger, and more able to live life and feel positive emotions again whilst simultaneously having a constant awareness of what's happened.

     

    I also have two younger sisters - the youngest was 21 when our Dad died and was distraught. A year or two later, she actually said 'in a strange way, it gave us all a boost' - I know that sounds odd, but what she meant was that we all have such greater perspective on things and greater resilience to cope with whatever life throws at us. 

     

    I want to re-iterate that everyone is different, and I know you're still at the very early stages of processing everything. I just want to give you some hope that whilst it's undoubtedly going to be a very difficult time, it is possible to get through it and actually be a lot stronger because of it. 

     

    Take care x

  • Thank you so much for sharing your experience, and I am also really sorry for your loss. It is something that really has been helping me process everything by hearing other people's stories and how we are not alone in this, and people do have the strength to get through. Thank you for sharing.

     

    When he went into a&e with chest pain at the weekend, the doctor said he had a bit of an infection, so is now on antibiotics. I am trying to live more in the day and not be overwhelmed by the unkown of the future.

     

    I can understand what you mean by anticipatory grief, (I will definitely google) it did feel like our world came crashing down around us when we found out and like  we were already grieving for him then. Since the chemo started last week, I feel that I am back at when we first heard too because the reality of everything is  very much sinking in now. 

     

    It is also grieving for the future I thought he would be there for, like with potential grandchildren or weddings, him and my mum enjoying their retirement together. However I try not to think about that too much as it's just very sad. 

     

    I am staying strong for him when I am with him as that is one thing he has said, he doesn't like to see us sad, but then we have been able to talk about it openly with him too, so it's good. 

     

    Your sister is very right, it does give you a sense of perspective that you only earn when you go through the toughest of times. Xx