Hi there...

O M G that's really bad .. I think I'd have been making a stand and demanding she gets help ..  it's crazy going through that with no help ... 

What I'd do now, is go on Marie Currie home page... get the phone number and tell them all that's happening, or in your sisters case, not happening ... we lost my sister to dementure a few months ago, and we had to stand up to the nursing staff .. we wernt rude, but we stood our ground ... and although they didn't like it, they starting doing more for her ... 

I know it's easier said then done ... but she needs someone fighting in her corner ... she needs proper pain relief .. and hopefully, you'll get practical and emotional help from Marie Currie... they are there for that reason when someone's been diagnosed and on that last journey,  and those caring and close to them ... write your questions down so you don't forget anything ...

Good luck .. stand your ground ... but don't loose your cool .. covid is no excuse to let your sister suffer .. let us know how it goes ... Chrissie.....

I agree with you!!! I've been saying this for months to my family. But we've had no idea who to call or take a stand with. The doctor just seems to keep palming us off and I genuinely think she will be dead before they treat her. I cannot speak to her doctor on her behalf so I can't call him.

We've been told yesterday that "we'll call you next week". This has been constant for well over 2 months. I'm so sick of it.

I will try calling Marie Curie, but I don't want to cause problems for my sister. She doesnt want to make drama and I don't want to make things difficult for her.

I'm so sad and hurt that she's not sleeping, eating and just coughing up blood all day everyday and absolutely nothing is being done.. how is this ok :( 

Trust me, she won't make things difficult ... they need a boot up the bum ... what a lovely family you have ..I'm lucky I have a strong ( not agresive) family ... bless her ... let me know how Marrie Currie go .. I'm sure your sister has someone who can represent her .. but they need to get things moving ... as she sounds in a bad way ... but if you explain to Marie Currie,  hopefully they will give you advice on how to go about it ... 

Don't give up ... Chrissie... sending a vertual hug.... Chrissie ... x

There are two things you can do, write a note to her GP saying she agrees to you being able to speak on her behalf, keep it simple, "I give permission for my brother (your name) to be involved in all my medical needs and that he can speak on my behalf.  Signed by (her name) then ring her surgery and ask how you can get this to them.  Secondly telephone Pals at the hospital she is dealing with, which is the patient advice line and tell them the situation, once again she can speak initially then confirm that you will be helping her.  These are very simple procedures and should ease your worries, no one will be upset as this is normal procedure when someone needs help and are struggling to deal with their bad health and push for treatment.  Please let us know how you get on.  Kind regards, Carol 

Hello Rango. 

As others have advised your first port of call should be your sisters gp and tell him/her of the current situation. Your sister will have to give her permission for things to be discussed with you. It. She should have also been appointed a Specialist cancer nurse when she was diagnosed and will have been given contact numbers. I cared for my late husband at home on his lung cancer journey and the care was arranged through our gp, they arrange community, macmillan and marie curie nurses. My husband was the same as your sister, he coughed up and vomited blood for most of his last 3 months.

We were pretty much on our own, monthly visits from community nurse and then every 3 weeks until his last 3 weeks . 

He was so ill in his last 3 weeks that gp wanted him admitted to palliative care in hospital but as he wanted to die at home I said I would carry on but would need some help. 

Community and out of hours nurses were so good, my front door was never locked but it was still very hard physically  and emotionally.  I became a carer not a wife but hubby got his last wish. Bless him

Keep pushing for whatever help you can get for your sister and yourself 

Sending caring thoughts.

Lynne.

Oh I'm so sorry.

This has me very worried, the coughing up blood has become an all day thing.. I have no idea if this is a sign of the end coming nearer. She has gone downhill very quickly.

We have no nurses, nothing, noone. We have no designated GP or specialist. I feel like we are being let down in every direction.

Hi,

I live with her, I am seeing how bad she is every day.

She has been referred to a cancer hospital after many tests from our local hospital but this is where everything has stalled.

They have not given us any info since, just that they will call next week. But everytime next week comes they say they will call back next week... it's never ending. 

I will speak to Marie Curie tomorrow, I hope they can help.

I know every case is unique - but would you say the coughing up blood is a sign that we're past treatment being possible?