AML leukemia

Does anyone on here have experience with AML Leukemia and cytarabine chemotherapy alone?

 

or combination chemo and what worked well?

  • Hi Nicola and welcome to the forum.

    We have some information about AML just here but hopefully some of our members who have experience of this diagnosis or have had this type of treatment will get back to you soon.

    Our cancer nurses are available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m if you'd like to discuss this with them as well.

    Kind regards,

    Steph, Cancer Chat Moderator

  • I do.... it is one of the reasons i am online to find others going with the same diagnosis...but it very HARD to find anyone. 

    not sure you will see this as the post is from some time ago but if you do....hope all is going well for you in 2024

  • Hi 

    All very new to me. 

    I am in the same boat, 43 years old. Healthly and no major symptoms other than spontaneous bruising. I was Diagnosed with AML Dec 2023 (t9;11 and other complex abnormalities putting me in higher risk) and had first round of chemo FLAG-IDA  but didn't work. I have been told that couple other things to try one being a new clinical trial in Oxford or another chemo drug but likely it will be palliative care with months left. 

    I am seeking any information on trials in UK or internationally including private sector. Also experience of others too. 

    Thanks and wish everyone well.