Mum's behaviour has changed again - brain tumours

Hi everyone,

I was wondering if anybody else had been in a similar situation.

My mum was diagnosed with lung/brain cancer in January this year, this has now unfortunately spread to her liver also. She has been in and out of hospital/hospices due to falling and stroke like symptoms (being unable to use her right side of her body). After mum being in hospital for the last 4 weeks she was moved to a residential home yesterday due to her not being safe at home. Unfortunately I have received many abusive/upsetting phonecalls from her today saying I am keeping her locked up and treating her like a prisoner.

The care home rang me this morning to advise she has had a seziure, then rang me back this evening to advise she had fallen and cut her face open.

 

Has anybody else been in a similar situation? We was told in January her life expectancy would be approx 12 months, is the above signs that she is close to the end? And how do I cope with the abusive phonecalls x

  • Hi, my dad in my home country has a very aggressive brain tumour, diagnosed this May, after so many trial and error. He has the same symptom as your mom - loss of control of limbs (left leg) due to the tumour's location that was pressing down on the nerves controlling his limbs, losing balance (he fell in the bathroom). He showed this symptom in January, where he crashed the car in the garage when his foot pressed down on the gas pedal. He is now on wheelchair (May onwards) and had a radiation in early June. From thence, he took steroids (dexamethasone) to control the swelling in the brain - when he has 2 doses a day, he would be strong enough to stand up. But if it goes down to 1 or none, he's completely immobile. He has also become nasty with his words - but it could be due to effects of steroids - it wouldn't be your mom talking, it's the meds talking... I would say visit her as often as you can, and call her more frequently - maybe take time to talk about your dreams, your faith and talk frequently about milestones in the past. This gives them motivation. Also they lose a sense of time, and have to be reminded constantly (memory loss due to the meds). My dear mom who looks after my dad is very tired, it is not easy - if only I could fly home to help. 

  • Hi Claire93,

     

    My dad was diagnosed with a grade 4 brain tumour in April and died 10 weeks later on 21st June 2020. All he received was palliative care. So with no treatment at all he died within 12 weeks from diagnosis however everyone's individual and there are so many variables to consider. For us the clear signs that end of life was nearing was when he became first of all restricted to one floor because of mobility and then bed bound (which was one week later) but this is all with hindsight and just looking at my dad's case. In that final week something deteriorated each day and he died 6 days after being confined to his bed, 5 days after being catheterised and 4 days after his last intake of food. 
     

    My dad had a grand mal seizure 6 weeks after diagnosis and we noticed that definite damage had been done that was irreparable after this seizure. It was only another 4 weeks after this seizure that he died. We were told to supervise him closely for the following 48-72 hours as the medication that is given to relax their muscles really can impact their balance and cause falls.

     

    I was very fortunate that my dad didn't get aggressive, abusive or angry as I know can be the case with brain tumours. The tumour was in his occipital lobe so I don't know if that had anything to do with it. Can I ask something personal here? Are they hyper exaggerations of your mum's personality? The reason I ask is that I have read that as patients approach their end of life, they can exaggerate personality traits ten-fold and more. My dad was loving, calm and patient and seemed to become more so as he came to the end of his life (apart from the final 48 hours which were a physical struggle and something i didn't feel prepared for). Again I do understand that he could have just as easily shown aggressive traits if the tumour had been pressing on another part of his brain. I have a few other ideas from a book that I read called Final Gifts which suggest that sometimes patients are trying to communicate something that they might be missing spiritually or emotionally but I don't know if you feel that this might be relevant or not?

     

    I'm more than happy to share and talk about my experience as this is where I came to try to read and find about others that might be similar to my dad's journey.

     

    Wishing you lots of love x

  • Hi [@Daughter1981]‍ - my mom ended up having the cancer spread to her brain and had little lesions kinda all over the place, not one big tumour. 

     

    My mom was still funny, brave, but she was confused. She was a talk-a-holic, always talking, always entertaining, but her sentences would trail off and became quiet 4 weeks before she left. :( <3 

     

  • My my mum was diagnosed with type 4 brain cancer 10 years ago and she is still you still here now I can't even stand up without has anybody else had this experience of being diagnosed with Type 4 brain cancer and she still wear your after 10-year when they give her  6 to 18-month to live and she still alive ather 10 yes

  • Hi, I'm sorry you had this experience. My dad has cancer in the brain and I'm told everywhere now.

    I would like to be prepared for what's upon me and would like to know the physical trouble you speak of?

    My dad mobility went totally within 6 weeks. Now in a nursing home only 1 week he is showing signs of determination.  He is forgetting simple things but often and his hearing has gone really bad now, agsin all in the last couple of days.

    I don't know what to expect though and I'm scared. He is a crying wreck at the moment and for a massive 6ft 4inch rugby player of a dad, i find this heartbreaking. I also have no support . I'm finding this very hard and have begun to resent everyone.

    I hope you are doing as well as can be expected going through a similar process. I'd love to chat. Kind regards. X