Stopping chemo and hospital MCR

Hi, I'm wondering if anyone has any advice for me... 

In March this year my dad was diagnosed with stage 3 gallbladder and bile duct cancer that had spread into his liver. 
he has had 3 full cycles of chemo so far and he feels worse after each session (3 sessions per cycle). He is seriously thinking about stopping the chemo because it was palliative only. The cancer is terminal - that is certain. 
 

he is currently under a brilliant hospital but he is worried that if he decided to stop the chemo that he would no longer be under their care and when he becomes unwell he would have to go to the local A&E and go through the normal triage/getting a bed etc and not being with the specialist. 
 

Has this happened to anyone? If so, what happened? 

 

TIA

  • Hello Ktgerrard

    I'm sorry to hear that your Dad has this diagnosis. It's ceratinly worth speaking to the team responsible for his care about what would happen if he decided to stop chemo. They will have had many patients who have chosen to make that decision in the past and they will be best placed to explain what, if any, changes would happen to the way that your dad's care is managed. 

    Best wishes, 

    Jenn
    Cancer Chat moderator

  • My husband was diagosed with stage 4 bile duct cancer 1 year ago.  He had 7 cycles of Gemcitabine at which point the chemo had stopped worked and treatment was stopped due to COVID 19.  After a lot of shouting (we felt neglected) we finally got to see the consultant again yesterday and they are about to start active sympton control and a different chemo treatment (provided my husband feels well enough).  The consultant did not think my husband would be alive after 9 months but he proved them wrong.  Keeping going can be hard but what my husband had been wanting was to keep going on one treatment until a better one came along.  Macmillan are brilliant and you should have a nurse assigned to your Dad who you can always talk to.  I don't think that your Dad will be cast aside just because he decides he cannot cope with chemotherapy any longer.