My dad has 3 types of cancer.

 

Hi 

My dad got diagnosed with throat, lung and penile cancer this time last year. Hes had radiotherapy but that hasnt helped. He has a stent put in is throat but since he had that put in he wasnt very well and couldnt eat. I took him to hospital and they admitted him hes been in hospital 3 weeks now. They have since removed the stent in his throat and now put in a feeding tube for all the time.This feeding tube has come out 3 times now and i think thats its putting my dad off. But my dad isnt condifient with doing his own feeds when hes allowed home. My self and my mum will help with the feeds but where not very condifient either, the hospital want him to come home and spend time with family. But my dad is now saying he doesnt wanna come home and would rather stay in hospital. It was only a week ago when the doctors rang me to say my dad wasnt very well and that he is deteriorting. I have spoken  to my dad and he doesnt sound like my dad. We was hoping to see if he could come out of hospital for a few days then go back in. We just feel like where not getting any support from the hospital which we do need.

Any advice would be great

Thanks

Lucy x

  • Hi, sorry to hear about your Dad, I lost my husband 2 months ago to oesophagus cancer, it is a scary time for everyone.  my husband spent a week in hospital shortly before he went, then two weeks in the hospice before coming home for the last couple of weeks. Toughest time of my life (and my children). The hospice was probably more support for us and a nicer environment for us all then the hospital, the children and I were allowed to stay and even bring our puppy. He was determined to come home though and strong enough to make it as easy as possible for me and his mum to look after him at home with the children there too ( he was crawling down the hall to the toilet the day before he died when he couldnt walk so he wouldn't be a nuisance for us!). Not many people,  especially older, would be able to manage that I think. We found hospice an improvement on hospital as it was more like a home environment then hospital but nursing care and expertise was still at hand. They let him come home despite how sick he was as that is what he wanted, but he ( and they) needed reassurance that we would manage ok. They taught me to administer his pain meds through a syringe driver and didnt let him go until we were confident.  the emphasis was on what the patient wanted, they needed to make sure he was happy to come home and have just me and his mum caring for him, otherwise they would have kept him in. Its important the patient is feeling safe. Is he able to swap to the hospice instead if he is not feeling ready to come home? It's a tough one but he needs to feel confident he will receive the care he needs, and may be worried about being a burden to you. The hospice also have people in for respite care to stabilize and feel more confident before coming home,  maybe that us an option for you. Or if not, make sure the hospital go over and over how to do his feed so you (and he) are not worried about it going wrong, especially if you think he really wants to come home but is nervous about it. I found the hospice more patient and supportive with teaching us stuff then the hospital were if you have that as an option.  Don't be afraid,  you can learn to do things you had no idea you were capable of, but try and get to the bottom of what he really wants...xx

  • Hi thanks for the reply sorry to hear about ur husband x 

    My dad came home the Wednesday morning he's doing well but he just looks poorly everyday. Where doing everything for him including his feeds and giving him water threw the NG tube. Just spending as much time with him as possible I know he's not gonna get any better x 

  • I'm glad he made it home with you all, hope they are making him comfortable, all you can do is give him your time and love, he knows you are there and you care about him. It's a very tough time though...xx

  • Hi everyone sorry I haven't posted for a while. My dad was home for 2weeks then he was moved in to a care home to look after him. He went in the care home on 10th July Friday he didn't like the care home as they wasn't giving him his feed at the right times and on another occasion they left him in a wet bed for 3hours I felt sorry for him it broke my heart. then on the Sunday we got the dreading phone call to say he's in a bad way. We rushed to be with him I stayed all day didn't wanna leave him. He passed away on 13th July it's been very hard these last couple ov months. I miss my dad so much.

    Just fought I would update you all and thank you for the support you all gave me 

    always here if anyone needs any advice.