Husband diagnosed with grade 4 brain tumour -how can I help?

Hi.got married in Feb this year three weeks later husband  diagnosed with brain tumour grade 4 starts with a g....cant remember name. He has started radio and chem treatment into 3rd week. He is so fatigued head very sore and now hair has fallen out! I feel so helpless and useless,I presume the pain will just get worse will it??  Its awful seeing him like this he keeps apologising and I dont know what to do. We have been told its 12 to 18 months that people survive with this kind of tumour??? How do I help him,what can i do,i have been a carer for over 20 years and always thought i was really strong but i now know I'm useless. Probably sounds like this message is about me but it's not i  just want to help him bit I'm stuck!! Can anyone help me please? 

  • Hi Bridge68

    I'm so sorry to hear about your husband. it sounds like a gliblastoma 4, which is what my dad has.

     

    I have helped my mum care for him as much as possible, The sife affects of the tumour as well as the treatment can vary wildly. In my dads instance, he's experiencing a left side neglect, where he isn;t aware of his left side and can't move it easily. My mum sorts out his meds (is there someone else there that can help as she uses me to bounce off and verify as she dishes out his weekly meds)

    getting a routine for you both that suits is good too. for it to include sleep for him (and you if needed), and gentle exercise.

    My other advice is also check out with your hsolital what is available. we had no idea there was so much in the way of physical assistance equipment for him and for people with these symptoms.

    I'm sure you are doing the best you can. dont be too hard on yourself, especially if you make a mistake. it's a lot to put on someone and a lot to take on. Be as kind to yourself as you are to him

     

    I really hope you start to feel better soon x