Ovarian cancer and ataxia.

I was 16 when my mum was diagnosed with stage 3 ovarian cancer. My brother was just 13. My mum was 42 at the time. She had a full hysterectomy folllwed by rounds of chemotherapy. My mum struggled to walk, kept falling over we thought this would improve following her surgery but it got worse. After several tests and brain scans she was diagnosed with ataxia cerebellum. Which for many who haven't heard of it is a neurological condition effecting the brain in regards to memory, coordination, speech etc basically it ruined our lives. My mum went from every other mum to being completely disabled, unable to speak properly, unable to do ANYTHING for herself. My mum is basically a cabbage. Over the last 9 years she slowly got worse and worse and we watched as the person we knew just disappeared to the body that she is now. She has now stage 4 ovarian cancer that doesn't behave like everyone else's which is typical of course. I write this because my mum was unlucky to be one in billions to get ataxia from a tumour. My life and my family has been ruined and ripped apart. Me and my brother haven't had normal lives like all our friends growing up. We've had to deal and see things children never should. Unable to live the lives we have wanted because of hospital visits, taking it in turns to look after my mum, putting her on the toilet etc. I'm 25 in September and I am more then envious of the people that I know that they don't have to deal with anything like this. My dad is a broken man, and once my mum isn't here anymore it won't be long before he won't be either as I am sure he just can't cope with what's happened to her. Our lives for the last 9 years have been soaked in pain and sadness. I feel like no body understands what we are going through. 

  • Hello Prettypol75 and welcome to the forum. 

    I was so sorry to read about all that your Mum has been through and the impact that this has had on your family over the last nine years. I think it's understandable that you feel as you do. I don't doubt that it's been very difficult for you and your brother helping to care for your Mum through your teenage years. 

    I'm presuming from your post that your Mum is at home with you all. Do you have support with her care? I hope that as a family you have some outside support available if needed. 

    You mention that you feel as if no one understands what you're going through. We've a few people here on the forum who have cared for parents, partners and loved ones and I hope that one of them will stop by to say hello! and share some words of encouragement with you. 

    You might find it helpful to have a look at the Carers UK website as well. They have a number of support options available including a specific online forum for carers and local support groups. 

    I do hope that you're able to connect with others in similar circumstances who have a real understanding of what you have all been through. 

    Best wishes, 
    Jenn
    Cancer Chat moderator