Grade 4 brain tumour

 

Hi all. I cant believe I am actually typing this

We took my mother in law to hospital last Friday due to her speech being slurred, she also cant think of what words she wants to say and on most days doesn't know who she is (thinks she is 16 when she is almost 65) and doesn't know who we are or where she is. It reminds me. Of that my nana was like when she had dimentia. She had a scan and was misdiagnosed with a mastatic brain tumour then we found out when she went to the walton Centre (a brain hospital) that she in fact has a primary brain tumour which is stage 4,quick growing, aggressive and the size of an orange. They said that without surgery she would only have weeks left. My fella (her son) won't let me talk abt it as that's his way of coping and it's driving me mad. On Thursday when she went to walton she was of sound mind and she decided to have the op. She was meant to be having it on Thursday coming but they have now transferred her from our hospital to walton today to maybe do it earlier (talk of Monday so far) i am absolutely broken as are the rest of the family. We can't be with her because of this covid 19 and can't even see her through the ward door like they were letting us in the other hospital as you can't get past the main reception so now she is on her own in the hospital and today keeps crying we have been video calling but after she has the op we won't be able to it's hell. 1 minute I'm upset the next I feel this over whelming anger is this normal? I am petrified as I seen my auntie die of a brain tumour so know whats coming. I'm absolutely heartbroken. I don't know how long it will give her having this operation as they said they can't take it all out and it's growing each day. My fella has it in his head that she is gna live years but I think that's denial. We will find out the name of the tumour and if she can have radiotherapy after she has the operation. This covid makes it so hard doesn't it? They said from now on she will need round the clock 24hr care so although a care plan won't be made until after the op I am worried rhar she won't be able to go home. 

She has 7 wonderful children and all us in laws and the kids want to care for her themselves but I don't know if that will happen but I just hope that we all get to see her and spend time with her   is anyone else in the same situation? Are these emotions normal? Has anyone any advice? Has anybody been in the situation or have loved ones who have and how long did the op add onto there lives. I know that each situation is different thankyou 

  • Hello

    All your feelings are normal and I can understand you feel anger but you must divert this energy into something else. As with any complex medical issue, you can't really do anything until you have information. If you feel you are not getting enough because you are not allowed in to the hospital I recommend using a service called PALS, all hospitals have one. It's a patient advice and liaison service. It is a free service and the staff act as a go-between from you to medical practitioners They are very good at breaking down hard to understand medical speak into more understandle information. Your relative will be in good hands with the best care available. Try not to worry.