Glioblastoma the devil within

Glioblastoma has walked into our lives and left an almighty stench. Then came Coronavirus!

You get told you have a year to live, and then you discover that you are not able to spend the last year of your life, being with family and friends. You then discover that your tumor is the worst type of Glioblastoma that has a poorer prognosis. You are offered radiotherapy and chemotherapy. Then told actually, it is too risky to give you Chemotherapy and too risky to give you a full 6 weeks of radiotherapy.  

I am caring for my partner of 7 years, in lockdown. No support and I am falling apart.

He is 58 and up until January played football and went to the gym. It's May, he has lost vision in one eye, has no short term memory. He suffers from facial blindness and is confused.

The person I once had to take care of me and share life with is now a 1/4 of that person.

I go from hate to love and sadness to anger. 

This is not the person I knew and this is not what he would have liked his last year to be like

I feel guilty that I am frustrated by being alone in this battle with his cancer.

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  • Hi,

    I am so sorry to hear about your partner and all your struggles. 

    There is some strange sense of comfort knowing that other people are in similar situation and you suddenly feel a tiny bit less alone. 

    My husband was told last July he had 18-24 months to live. However, today we were told that his time is short. We are devastated and I am still in denial thinking it will get better and he will be again well and we will be able to do things we used to do together. I refuse to accept how poorly he is.  Watching his brave fight with this cruel cruel disease is breaking my heart every day more and more. He is being taken away from me painfully bit by bit. Being in the lock down makes it a thousand times worse. This is the time when we need our families and friends the most. 

    I get so frustrated and angry and emotional...

    I am a strong person but this is breaking me and I am struggling. 

    I wish you all the best and keep strong.

    Kat