Covid-19 Catch 22 - how to comfort sick relative safely

Hi all,

I've posted a few times about my mum (83) and her journey with Stage 4 Carcinosarcoma (www.cancerresearchuk.org/.../mum-has-carcinosarcoma-of-the-uterus) but have a specific question now, hence new post. I've searched the forum but can't see that this has been discussed.

Mum is realistically nearing end of life. She's still living at home, with a live-in carer. I live a few miles away. She is shielding because of Covid-19 and I go round a couple of times a week to wave at her through the back door. She has a multitude of issues that we are struggling to keep on top of including some dementia, undiagnosed but very evident. It's so hard when palliative care nurses and the District Nurse say they can't come and see her.

I live alone, hardly go out, maybe to the local shop once a week. What she says she wants, more than anything else, is a hug from me. She may have a few weeks/months at most to live and can't bear the idea of dying without any physical contact with her nearest and dearest. Neither can I.

I am debating going in and hugging her. I have a mask and gloves. What else can I do to minimise the risk? I would NEVER do this if she wasn't quite close to the end of her life, but the stories of people dying without having any contact with relatives are so upsetting, and she is so depressed and sad.

I'd never forgive myself if I gave it to her unwittingly, and I'd never forgive myself if she died without us ever having any physical contact ever again. Catch 22.

Is anybody else in the same position, or can put themselves in our position? I know it's a massive risk, but everything seems so hopeless.

kt

 

  • Hello kt, 

    This is such a sad story and a real catch 22 as you say. It's so tough to have to be physically apart from our loved ones at the moment and I can completely understand why your mum is feeling this way. We have information on our site on coronavirus and advanced cancer which you can find here as well as general information on coronavirus and cancer on this page. I hope this will give you some pointers on what to do in your situation, but perhaps it would be a good idea to give our nurses a call on Monday and talk things through with them. You can ring them on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm. 

    We're all thinking of you and your mum during these extremely challenging times. I hope that you will hear from some of our members who may have been in this difficult position before.

    Best wishes, 

    Lucie, Cancer Chat Moderator

  • Thanks Lucie,

    I do very much appreciate your response. I had a look at the links. It says

    "Can family and friends visit me in my home towards the end of my life? The government has asked everyone to stay at home and stay away from other people. They list some reasons why people can leave the house. Unfortunately, they do not include visiting someone who is dying in their home as a reason you can leave your house."

    It's really not that black and white. I can get to my mother's house in half an hour by bicycle, so it would  be within an hour's daily exercise. That's why I asked the question. I know the goverment's advice, I want real life advice.

    kt

  • Hi Kt

    As well as the info on this site, I'm wondering if you're aware of this government guidance in relation to shielding individuals. 

    Staying at home and shielding

    You’re strongly advised to stay at home at all times and avoid any face-to-face contact if you’re clinically extremely vulnerable to protect yourself.

    This is called ‘shielding’.

    And:

    If you do not want to be shielded

    Shielding is for your personal protection. It’s your choice to decide whether to follow the measures we advise.

    For example, if you have a terminal illness, or have been given a prognosis of less than 6 months to live, or have some other special circumstances, you may decide not to undertake shielding.

    This will be a deeply personal decision. We advise calling your GP or specialist to discuss this.

    Your Mum has a choice as to whether to shield or not. She could decide not to...however, I have absolutely no medical qualification whatsoever and so, as above, your Mum should discuss this with her GP. 

    Could she decide not to shield and move herself into yours? Or you move into hers? I note she cannot have any nurses at present - could you move in as her main carer and follow the advice outlined by the government here (living with others, including shielding individuals): 

    www.gov.uk/.../guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19

    Not gonna lie....if I were you and I was free of symptoms, I'd be hugging as much as I could. I think I'd take the risk, even if the hug had to be in masks and gloves xxx but...as I say, I have no qualification to advise anyone to do the same....

  • Thank you citygirl111!

    I hadn't seen that. Will ponder...

    kt