I'm 21 and my husband is 28. We've been married just over a year. He had a benign brain tumour since he was 10 so 2002 and had it operated on. In 2017 he had his routine mri scam which showed that his tumour had begin to grow. We got married in 2019 a month after we were told that chemotherapy and radiotherapy had shrunk the tumour slightly and stopped it growing. We also bought our first place together.
4 months after this, we were told it had carried on growing and was now a grade 4 tumour. As my husband is young and has tolerated all treatment well they have carried on giving him chemotherapy.
Now sitting here writing this post in April 2020 I don't know how we've got to where we are. I know my husband has managed to live a lot longer than statistics would say but within 6 weeks he has gone from working a full time job to not being able to do anything for himself. He can't stand, go to the toilet or even feed himself. I feel like I have no idea what to do to help, some days he does not even know who I am. The carers that were coming in to help now don't due to the corona virus and me being home with my husband to help.
I don't feel like I can cope anymore and I feel extremely guilty of this, I am still sitting my university exams but have also become a full time carer whilst managing to keep our home in an acceptable state.
I'm also dreading what is to come. We haven't made any plans and due to him having a tumour since 10 he was not able to get any life insurance. I'm terrified of financially what is going to happen but more than that I have no idea how I will cope without my best friend. I feel like we have had such a small amount of time together and that it is being taken away from us both so young.
i suppose I'm just looking to vent and family and friends as much as they care, they don't seem to understand. Any advice of how to stop feeling so guilty and stressed out and how to comfort my husband on such an awful time would be amazing.
