[@Ronnie46]‍ 

What amazing news! I’m so happy for you both. Apologies for not being around much. I posted on my thread today. 

I cannot imagine the relief you must’ve both felt. Sending you a big hug

Take Care

Kuiper 

Hello Daisy 

In five weeks does your husband have a scan or what is the plan? I agree that we really need to stay away from hospitals at present. We heard today that a nurse is coming tomorrow to remove my husband's PICC line as he is not having chemo for a while. It means he won't have to go to hospital to have it flushed each week, which is a relief.

My husband gets up several times each night but seems to be able to go back to sleep. He usually sleeps in his chair after lunch. He reads a lot and nods off.

I hope your husband can start to enjoy his food again, it makes such a difference.

best  wishes

Ronnie

Hi Ronnie,

  how are you and your husband doing? Hopefully things are continuing to go in the right direction for you both.

Things not so good with my husband,  he's still unable to face eating very much and so fatigued still - Its like chemo 6 sucked everything out of him. Ive no idea if he's going to get his radiotherapy now or if hed be strong enough to cope with it if offered. Blood tests next week and then phone appointment with his oncologist to see if treatment is to continue vs risk of contracting coronavirus it must be so difficult working in the NHS at the moment having to make these decisions.

I am now furloughed from work so home all the time, although I don't think I'm doing him much good as seem to be saying or doing the wrong thing all the time and stressing him out! 

Take care and stay safe

Best wishes 

Hello Daisy-May

Nice to hear from you. Sorry to hear that your husband's appetite hasn't picked up. Is he maintaining his weight? Several small meals just as good as a couple of larger ones and easier to digest.

I suppose you will have to go to a hospital for his blood test next week and that is worrying just now. The good weather has meant that we can sit inthe garden and have a coffee and a chat when I get back from the morning dog walk. The days are very long while we can't see anyone or go anywhere and you must really notice it since you are not able to work. Are you managing to fill your time?

It is true that when we are ill and anxious we have a low tolerance for everything outside ourselves. It is so usual that the irritation is directed at the person we are closest to and for your husband that is you in the line of fire.  Being at home means you are available to help but also to get it in the neck more often. I think a lot of carers feel they can't do anything right so try not to take it personally, you are there if he needs you. I wonder if men find being ill more difficult as they like to be in control?

I stay out of my husband's way apart from mealtimes and evenings with the TV. He spends a lot of time at his computer, reads and dozes and this week has even been pottering in the garden. He does get irritable if he thinks I am fussing and I think I am trying to help!

 I hope you enjoy this weekend. I am thinking if it is as warm as they forecast I may make salads and pretend it is summer. 

Best wishes

Ronnie

Hi Ronnie,

Thank you for your reply you are right with everything you say, but its always good to hear it from someone else in the same situation :)

We've had a really busy week so far more blood tests, radiotherapy planning scan, phone consultations etc. We now have way forward blood transfusion today, radiotherapy blast on Tuesday and at last some pain relief for his arthritic hip! Once today is out of the way I'll feel better as he's developed a fobia of needles so hes dreading the cannula.

Hospital have been really good and there are stringent processes in place for infection control for such a big hospital it was so quiet this week with the majority of the cancer centre doctors deployed to the main hospital and very few patients - it must be harrowing for the ones newly diagnosed and having treatment delayed my heart goes out to them all.

How was your weekend hopefully you had a good one and the salads went down well, we did the same & plenty of fresh fruit and ice cream - oh and hubby has got a liking for scrambled egg made the Gordon Ramsay way (minus the bad language  of course hahaha) so fingers crossed the bloods today and the zap will have him continuing to feel better about eating.

It has been so summer like this week I hope that you have managed to have time in the garden and the dog has been good company for you - our miniature schnauzers are marvellous as a distraction from everything  usually because they're up to no good. 

We managed a short walk yesterday  work have loaned me a wheelchair and it was a welcome change of scenery for him.

Take care Ronnie have a good day and enjoy the good weather and have a good (if quiet) Easter weekend 

Very best wishes

Daisy-May 

Hi Ronnie, 

Just a quick message to see how you both are?

Hopefully you have managed to have some nice days in the garden and everything is well with your husband at the moment.

I'm still trying to my way round the posts on here so apologies if i pop up in random places.

Best wishes

D-M

Hello there

We are ok thanks. Been doing lots of gardening. Also sitting in the garden with a coffee and chatting. We have a schnoodle, a cross between a miniature schnauzer and a poodle. His coat is quite long and bushy because I can't get him trimmed so I think he may be feeling the heat in this nice weather. He gets me out for daily walks which is good.

Did your husband's radiotherapy and blood transfusion go ahead? How is his appetite? I have heard that all cancer  treatments are on hold at present. How is he at present and are you managing to shop etc? 

My fear is that my husband's tumour starts to grow again so that he can't eat. I am so afraid of him going into hospital and being alone. The plan at present is For a ct scan at the beginning of June. I know from experience that if he gets ill and I phone the oncology helpline they always say take him to A & E.  Fingers crossed he can manage at home.

Good luck and best wishes to you both

Ronnie

Evening Ronnie,

Thank you for the message.

Radiotherapy went ahead yesterday after blood transfusion last Thursday.  He has more blood tests on Friday and then  phone consultation Monday to get results. He's managed a bit to eat today despite the nausea and is religiously taking the anti sickness pills. How is your husband's appetite now?

Our neighbour was 88 today and everyone sang Happy Birthday from their windows and driveways this evening, very proud to say that he joined in from the window which meant a lot to her.

We have managed to get a delivery of food and basics this week so we'll only need top ups of essentials over the next few weeks so going to use the local shops and avoid the supermarkets, are you able to shop safely?

Its odd that you have to go to A&E if your husband is taken ill, we have always had to go directly to the cancer wards maybe it will have changed for you now. It is all a worry for you and June probably feels like a lifetime away for you both for the scan. Im sure we all feel the same at the moment when we have to go to appointments we don't want to because of the risk snd when we don't have appointments it feels that we should be.

Enjoy the nice weather and garden, and the dog of course .... coincidentally our dogs are miniature schnauzers also in need of fur cuts!! 

Take care and look after yourself 

X

Hello Daisy May

How are you both? Have you been able to enjoy the fine weather? We have done loads of gardening and turning out.

My husband's tumour is growing and he is struggling to eat again. It is two months since his last chemo and we thought he would get a longer break. Between meals he is ok but he took an hour and a half to eat breakfast this morning. The last we heard was that he would have a scan in June. He says he will phone the cancer nurse tomorrow to see if it should be brought forward. I wonder what they will offer him?

Fingers crossed

Ronnie

Hi, we were told my husband could have a stent put in if he wasnt able to eat, they may also try 2nd line chemo..

Hope it goes well for you