Oesophageal Cancer

Hello there

My husband was diagnosed on 2 October with a tumour just above the stomach. He was 72, very fit and has never smoked or had acid reflux. He hardly drinks alcohol. At first the doctor mentioned an operation but subsequent tests showed the cancer is in the lymph nodes so he was offered chemotherapy.

He had oxaliplatin by infusion and capecitabine tablets but could not tolerate the nausea. He couldn't eat or keep water down and spent five days in hospital. The second chemo was Folfox and is intended to be six cycles of two weeks. Oxaliplatin by infusion and a pump for 46 hours. He has a PICC line in his arm. This second cycle caused ulcerated mouth and thrush and again he couldn't eat and spent five days in hospital. The next chemo was delayed for two weeks as he had zero white cell count. On Friday he had another infusion and pump and so far is fine. They reduced the chemo to 80% and we are hoping this will mean the side effects are easier but we also have lots of mouth medicine if the ulcers start again. Fingers crossed.

 

My husband has lost his hair and it surprised my how aging that was. He wears a bandana in the house and a beanie when we go out. That means he looks like himself but thinner as he has lost weight. The chemo must have shrunk the tumour as he is able to eat almost normally at present.

 

I am wondering if there are people going through the same experience or have been recently. What can we expect was the chemo goes on? Does it get easier?

 

 

  • Hi Den, i was sorry to read your story and hear about the sad loss of your husband.  Do you have a local hospice which offers support groups for bereaved families? Maybe when you feel ready, you and the children could go together initially,  so that you then have a "safe haven" to visit whenever you need to. X

  • Hi Daisy,

    Yes I have thought about it, maybe in time x

     

  • Den, I can understand  how your "bubble" is all that you need right now, although your daughter goes back to work soon, what a comfort it must be that she still lives with you, and your son is staying, looking  after his beloved Mum until University calls.  You have lovely, caring children.  If you can,  accept visits from friends during the day and in the evening your daughter will be home with you.  One day at a time is the only way to go.  xxx        

  • Hello there

     

    Really sad to hear your news. We will all have to face this but still shocking to hear that you have lost your husband so soon.

     

    Thinking of you 

    Ronnie

     

  • Hello

    We were told today that the scan shows the tumour has shrunk and the cancer has not spread. My husband's white cell count was very low again so they have told him to inject himself with Filgrastim for five days. We have to pick these up tomorrow. So no more chemo for three months. 

     

    Good news about the scan but worrying that there is no treatment for three months. My husband is delighted and looking forward to getting his taste back and maybe even his hair.

    fingers crossed.

     

    Ronnie

  • Hi Ronnie , great news that the tumour has shrunk and no more treatment for 3 months.  Hopefully your husband's white cell count will recover really quickly and you can enjoy some really nice times with spring just around the corner x

  • Hi Ronnie

    How are you and your husband coping with the injections?

    Hope his white cells are picking up and you are both ok

    Daisy-May 

  • That's fantastic news!

    I know from experience how hard it is to know you'll not have a scan or anything for three months. In my case, I was told to ring my oncologist's secretary if I showed any symptoms. I did and was called in for an emergency scan. Luckily it was just really bad chronic acid reflux but good to know I could get an emergency scan if I needed one.

    Good luck and may the good news keep coming!

    Dave

  • Hi there

     

    Injections finished and no side effects so far. His taste is coming back and he feels pretty good. We were planning a weekend away but with this virus scare probably safer to stay home. Scary times.

     

    What is your news?

     

    Ronnie

  • Hi Ronnie, 

    Good to hear that things are going well for you and your husband. Agree with you that it feels safer stay to at home, he's probably still vulnerable after chemo.

    My husband is still suffering from the side effects of the 6 rounds of chemo - finished it 6 weeks ago but still has not regained his appetite although he is trying  to eat 6 small meals a day. The worst bit is his inability to sleep properly at night which is really messing up his days.

    We're not due to go back to hospital for another 5 weeks, which given the current situation is probably for the best. I feel so sorry for the people who are going through treatment at the moment it must be such a worry for them knowing that their immune systems are so low.

    I hope that things continue to go in the right direction for you both and for everyone's sake this virus doesn't hang around too long. 

    Hope you are having a good weekend 

    Daisy