Oesophageal Cancer

Hello there

My husband was diagnosed on 2 October with a tumour just above the stomach. He was 72, very fit and has never smoked or had acid reflux. He hardly drinks alcohol. At first the doctor mentioned an operation but subsequent tests showed the cancer is in the lymph nodes so he was offered chemotherapy.

He had oxaliplatin by infusion and capecitabine tablets but could not tolerate the nausea. He couldn't eat or keep water down and spent five days in hospital. The second chemo was Folfox and is intended to be six cycles of two weeks. Oxaliplatin by infusion and a pump for 46 hours. He has a PICC line in his arm. This second cycle caused ulcerated mouth and thrush and again he couldn't eat and spent five days in hospital. The next chemo was delayed for two weeks as he had zero white cell count. On Friday he had another infusion and pump and so far is fine. They reduced the chemo to 80% and we are hoping this will mean the side effects are easier but we also have lots of mouth medicine if the ulcers start again. Fingers crossed.

 

My husband has lost his hair and it surprised my how aging that was. He wears a bandana in the house and a beanie when we go out. That means he looks like himself but thinner as he has lost weight. The chemo must have shrunk the tumour as he is able to eat almost normally at present.

 

I am wondering if there are people going through the same experience or have been recently. What can we expect was the chemo goes on? Does it get easier?

 

 

  • My husband Stuart was getting food stuck in oesophogus so they had to put stent in to open foodpipe I too miss going out for meals that was our thing to do together not out much as Stuart is too cold waiting on better weather we watch TV DVDs and go short car journeys for shopping our family good bit away so quite isolated  x

  • Stent put in if needed by endoscopy under localanathsetic

  • Yes my husband feels the cold too. I got him an electric blanket and he has a hand warmer. He dozes a lot in his chair.

     

    So does the stent have to be changed regularly or does it fail in some way? At present my husband can eat normally but says everything is tasteless. The chemo must have shrunk the tumour as I had to purée his food before but perhaps it will come back. Was this your experience?

  • That's great he can eat normally ad tumour shrunk due to chemo food is tasteless due to chemo he may no need a stent get support for you as well as its really hard for the wife x

  • Hi,

    Things haven’t gone so well for us, my husband (who didn’t weigh much in the first place) after cycle 2 of chemo was still unable to eat, he went down to 6 stone and was not well enough to continue with the treatment. 

    He has got worse and we have a hospital bed at home, nurses come daily to change his pain relief pump.

    we spend our days and nights watching tv in between him drifting in and out of sleep, still taking each day as it comes, making most of the time we have left x

  • Hello

     

    I am very sorry to hear your sad news. You must be exhausted. I am sure your husband has tried the Fresubin liquid meals from the hospital dietician but if he feels nauseous, even those are hard to take. Are you able to get some rest when your husband sleeps?

    I hope you have family support and friends to talk to.

    My daughter took my husband today for his blood transfusion so  I took the opportunity to meet my old work friends for lunch. It was good to have a chat and forget for an hour or so. Hoping the extra week between chemo and the blood transfusion will help him to feel better these coming days.

     

    With best wishes

    Ronnie

  • Thankyou x He no longer eats now and the last couple of days its been hard to get any fluids in him, i am giving him lollies and Fortijuice as they have more sugar in them and at the moment I am struggling to keep his bloods levels from dropping, tonight I had to give him a Glucogel and I am sat hoping they will rise a bit, he did have Fortisips but cannot swallow them now.

    Yes I have my son & daughter home for a few weeks now so we all spend our time watching films with my husband and I think we all drift in & out of sleep! I dont like to leave the house for too long just incase but we do take it in turns to walk the dog and the children have been going out for lunch with their friends some days.

    Glad you managed to get out with your friends your right it does you good and gives you a little lift for a while, you should keep it up maybe once a week if you can,  I did meet up with an old friend when my husband wasnt quite as poorly.

    Crossing fingers for your husband I am sure the blood transfusion will perk him up a bit.

    Best Wishes

    Denise

     

     

  • Thank you Denise. Glad to hear you have children to share with. 

     

    Thinking of you at this awful time. We really never know what's round the corner do we. 

     

    Best wishes

    Ronnie

  • Hi Ronnie46

    I just thought I’d read your posts. When is your husband having his blood transfusion? 

    I felt sad reading yours and den13’s posts. I thank goodness you have good family support

    I know I don’t write much but I’m sure you understand  that my head still feels like frazzled spaghetti and the overwhelming sadness hurts

    I wish you all so much warm kind wishes

    Kuiper

     

  • Hello There and thanks for your message.

     

    My daughter took my husband for his blood transfusion on Friday. It took four hours for two units which surprised me. I used to be a blood donor when I was working and the donation only took a short time. Anyway he was tired on Friday but we walked up to town for a coffee and a chat with friends on Saturday. He enjoyed that but dozed in his chair most of Sunday so I guess it wore him out.

    it was sunny this morning and we walked round the garden to get some sun on his skin. At present he is able to eat and maintain his weight. His next chemo will be on Friday and he is always frail for several days afterwards.

     

    How are things with you? Is your husband well enough to go out at all? Do your children live at home? I think it is helpful to have other things to talk about to take your mind off the cancer now and then. Is your husband coping with the chemo pills?

    Is your cancer hospital quite close? It takes an hour to an hour and a half for us to get to hospital for blood tests and chemo. It makes for a long and tiring day

    This may be silly but I am stocking up on groceries as I am afraid if this new virus spreads I won't be able to shop for fear of bringing germs home to someone with no immune system.

    Best wishes

    Ronnie