Supporting my 6yo cousin with leukaemia (ALL)

Hello all,

My 6yo cousin was diagnosed with leukaemia (ALL) on Friday. We're feeling horrified, but pulling together to support each other. She's a tough kid, and we're so fortunate that research and treatment is where it is today.

I've been doing all I can to support her most immediate family, but I'm looking for some advice on how to support her.

As she's so young, she hasn't fully grasped what is happening to her, and how this will affect her over the next couple of months and years of her life. She's started on chemo, and we've been told that she'll lose her hair.

This is largely where I'm looking for advice. When I found out, without missing a beat, I realised I'm prepared to shave my hair off so she isn't alone in this loss of hair, however, it has been mentioned to me that at her age, this mightn't be the most helpful thing.

I'm 22, and also female. Just before Christmas, I had my hair cut to my shoulders, and my cousin was obsessed with it! She had also recently began learning how to tie her own hair up, and would not stop trying to tie mine up too (because it was different, and she's "not had a go" on hair like mine!).

It is this which leads me to think, maybe she would like to have another person's hair to play with? Maybe she would benefit from everyone else looking "normal"? Or would she prefer having someone that has their hair (or lack of) like her?

She's always excited to see me, and is interested in what I do etc. but she's never been the type of kid who is quick to copy; she likes to figure things out herself.

I guess I'm just hoping that someone out there has had similar thoughts and experiences. I just want to do what's going to be best for this little girl who I love so dearly.

I plan to do what I can to support other families who may not be so fortunate as to have as positive an outlook as us. I'm so sorry to admit that it took this affecting me so closely to give me the final push to book an appointment to give blood, and finally stop procrastinating registering myself on the stem cell register. 
 

Thank you so much in advance for any advice, or for just reading this - please let me know if you have any other suggestions for ways I can support her, too, I'd really appreciate it. Big love to all who need it right now x

  • Hello bookworm1198, 

    I am so sorry to hear your little cousin has been diagnosed with ALL it must have come as a real shock to you. She seems to be an adorable little girl and you and her seem to have such a strong bond it's so cute how she likes to play with your hair. I can imagine it is difficult for you to know what to do with regards to your hair and what the best way to support her would be. I think you probably know her better than anyone so I am sure you will find what the best approach would be and whether you should shave it off or on the contrary keep it long so that she can keep on playing with it. I hope that you will hear from others here who have had to make a similar difficult decision before and that they will share with you what they did to support a child with cancer. Whatever you end up doing, I am sure she will appreciate you just being there for her, playing with her, spending time with her. 

    It is also a lovely initiative of yours to book an appointment to give blood and to register on the stem cell register. 

    You might be interested in reading our information on cancers affecting children and young people which you can find on this page. More specifically, we have detailed information on Childhood ALL here and this page in particular will give you information and tips to help you cope emotionally as well as resources and organisations that can help those who are supporting a child with ALL. 

    For support and information, you can also call the Cancer Research UK information nurses on freephone 0808 800 4040, from 9am to 5pm, Monday to Friday. They can give you further advice about who can help you and what kind of support is available.

    I hope this helps and that you will soon hear from others who have been in a similar situation. 

    Very best wishes to you and to this amazing little girl, 

    Lucie, Cancer Chat Moderator