Hi, I am new to this forum and wondered if anyone could help me with a palliative care / hospice question.
My grandmother is 89 and was diagnosed with mesothelioma lung cancer in August. We were told it is an aggressive rare cancer with very low rates of survival beyond a year.
She has decided she does not want treatment (chemotherapy etc) and wanted to live as best she could until it inevitably takes hold.
About six weeks ago she fell over her coffee table and broke her hip and was taken to hospital as the fracture left her immobile.
We then found out that she also has breast cancer which has metastatised and spread to her spleen. The doctor confirmed she has a few short months at the very best.
She caught pneumonia in hospital and was lucky to come through. She then got transferred to a rehab clinic for her hip but she got pneumonia again and a urinary infection which the rehab facility couldn't cope with. To be honest we were surprised they took her in the first place. She got transferred back to the hospital and spent 24hours in a&e before being transferred to a ward where she is currently fighting this latest infection. She is expected to pull through again however the doctor has told us that she will continue to get these infections given her immune system is so weak and this is what will cause her death at some point.
Eventually she will need to be discharged from the hospital but we don’t know where. The rehab facility have said they can’t deal with her case and she can’t go back to her home as the man she cohabits with is not long for this world and he is receiving full time care at the home.
The Macmillan nurse has said it’s not practical for her to live with me and her daughter (my mother) due to her complex medical needs, but the Macmillan nurse hasn’t been forth coming with information or a plan on where the best place is for her to be once the hospital have to discharge her.
I am not expecting my grandmother to survive until Christmas and think we now have a matter of weeks. She is dying and in the final stages and it is a matter of time until she succumbs to another infection. I want to try and make her final weeks as comfortable as possible and believe she now needs full time palliative care but I just don’t know where to start.
My other grandparents passed quickly and this is my first experience of trying to care for someone with cancer. In terms of figuring out the best place for her now and how to get that organised I am completely lost and confused as to how it works and what to do.
If anyone can provide any information or advice I’d really appreciate it
Thanks and best wishes