Anger and mood swings with terminally ill diagnosis

Hi all, 

My step dad was diagnosed with terminal cancer in August of 2018 and was initially given 2 months to live. It's with great hot that he is still with us today, over 15 months on from his initial diagnosis. He had about 6 months of chemo last year, and they have just commenced his 2nd and batch of 6 months worth of chemo, after about a 6 months break.

I don't have a huge amount of knowledge of his diagnosis and his medication, however, the cancer has continued to spread over the year, it started in his prostate and spread first to his spine, now I believe it is in his blood, kidneys and liver. 

During his first round of chemo he experienced some hallucinations and low mood, he lost his hair and a lot of weight, but during the 6 month break he regained his hair, the weight and generally experienced a more consistent mood. 

This time however, we are three treatments in and his moods swings have become vile. He is nasty and vicious, he is at times completely irrational and my sisters describe him as being almost possessed at times. It's not constant, but he has outbursts every few weeks. 

Im fortunate as I live away, and don't need to experience this all first hand, but my younger sisters, 21 and 11 and my mum are having to deal with this hostile environment all the time. I've encouraged them all to see counselling, however my step dad attended one session and hated his therapist, he now refuses to go back. My mum unfortunately has the outlook of 'I'll speak to someone once he's gone'. No matter how much I try and encourage it, they refuse. I can't force them. 

I'm trying to help as much as I can, visiting often and having my sisters come to my house as much as possible, but this also makes him angry, as he feels we are planning things against him or just trying to avoid him. 

Today he's having a particularly bad outburst, refusing to take his medication and saying that he wants everyone out of the house. In the past he has made comments about just wanting to be left alone to die. Understandably, my mum is at breaking point, my sisters are scared to leave their rooms and I feel completely helpless. 

Is there more or alternative options/services that can support with this? I just don't know what else I can do anymore to try help. 

Thank you, 

Lauren 

  • Hello Lauren

    I was so sorry to read your post. What an incredibly difficult situation you all find yourselves in. It's good that you're able to step in and support your sisters when you're able to. I'm sure that they appreciate the break and I would imagine that your Mum is grateful that they're able to step away from the situation too. 
    We know from members who have posted here previously that when someone outlives a prognosis such as your Dad has done that it can impact on their emotions and behaviour. I'm sure that when your Dad was initially diagnosed and told he had only 2 months to live that he experienced some strong thoughts and emotions. And now 15 months on he is still here, having been through treatment once and now dealing with it again and facing the uncertainty of what lies ahead. 

    You mention that you don't know much about his diagnosis or medications and it's certainly possible that those are impacting on his moods. 
    It sounds positive that Dad was at least open to the idea of talking to a counsellor. Do you know if he, or Mum, have told his Consultant or specialist nurse about his mood swings and the impact that it's having. I would certainly encourage them to speak to someone involved in his treatment as it may be that something needs reviewing, can be adjusted, or additional support offered. 

    If any one of you from the family would like to talk things through with one of our team of nurses then you/they are welcome to call them. They're available Monday to Friday, 9am to 5pm. We also have some information on our website about coping emotionally

    I really hope that things improve for you all soon. 

    Best wishes, 
    Jenn
    Cancer Chat moderator